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Group by: Type | Date
Jump to: 2025 | 2024 | 2023 | 2022 | 2021 | 2020 | 2019 | 2018 | 2017 | 2016 | 2006
Number of items: 79.

2025

Alqazlan, Sohil; Totsika, Vaso; (2025) A Qualitative Study on the Role of High School in Supporting the Transition to Post-School Life for Young Men With Intellectual Disabilities. British Journal of Learning Disabilities 10.1111/bld.70016. (In press).

Dimitrova, Elizaveta; Kouroupa, Athanasia; Totsika, Vasiliki; (2025) Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic. American Journal on Intellectual and Developmental Disabilities (AJIDD) , 130 (1) pp. 24-40. 10.1352/1944-7558-130.1.24. Green open access
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Tenorio D, Marcela; Sagner-Tapia, Johanna; Garibaldi, Renata; Totsika, Vaso; (2025) Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents. BMC Pregnancy and Childbirth , 25 , Article 536. 10.1186/s12884-025-07665-2. Green open access
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Timmerman, Amanda; Totsika, Vasiliki; Lye, Valerie; Crane, Laura; Linden, Audrey; Pellicano, Elizabeth; (2025) Quality-of-life measurement in randomised controlled trials of mental health interventions for autistic adults: A systematic review. Autism , 29 (3) pp. 579-595. 10.1177/13623613241287586. Green open access
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van Herwaarden, A; Peters-Scheffer, NC; Mulders, M; Totsika, V; Didden, R; (2025) Effectiveness of Active Support on the quality of life and well-being of people with moderate to mild intellectual disabilities. Research in Developmental Disabilities , 157 , Article 104925. 10.1016/j.ridd.2025.104925. Green open access
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2024

Buxton, H; Gomes, M; Gafoor, R; Taylor, Z; Totsika, V; (2024) Measuring quality of life of adults with intellectual disabilities: Psychometric evaluation of the personal outcomes scale in the United Kingdom. Journal of Applied Research in Intellectual Disabilities , 37 (2) , Article e13189. 10.1111/jar.13189. Green open access
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Goyen, E; Grindle, C; Totsika, V; Sapiets, SJ; (2024) Implementation of an adapted Handwriting Without Tears® programme for children with developmental disabilities in a special education setting. Tizard Learning Disability Review 10.1108/TLDR-07-2023-0015. (In press). Green open access
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Laxton, Sophie; Moriarty, Caitlin; Sapiets, Suzi J; Hastings, Richard P; Totsika, Vasiliki; (2024) Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities 10.1111/jppi.12486. (In press). Green open access
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Loizou, Sofia; Pemovska, Tamara; Stefanidou, Theodora; Foye, Una; Cooper, Ruth; Kular, Ariana; Greenburgh, Anna; ... Johnson, Sonia; + view all (2024) Approaches to improving mental healthcare for autistic people: systematic review. BJPsych Open , 10 (4) , Article e128. 10.1192/bjo.2024.707. Green open access
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Randell, Elizabeth; Nollett, Claire; Henley, Josie; Smallman, Kim; Johnson, Sean; Meister, Lena; McNamara, Rachel; ... Kennedy, Eilis; + view all (2024) Watch Me Play!: protocol for a feasibility study of a remotely delivered intervention to promote mental health resilience for children (ages 0-8) across UK early years and children's services. Pilot and Feasibility Studies , 10 (1) , Article 55. 10.1186/s40814-024-01491-7. Green open access
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Rudra, S; Ali, A; Powell, JM; Hastings, RP; Totsika, V; (2024) Psychological distress and convergence of own and proxy health-related quality of life in carers of adults with an intellectual disability. Journal of Intellectual Disability Research , 68 (1) pp. 74-83. 10.1111/jir.13088. Green open access
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2023

Donoso, Javiera; Rattray, Fiona; De Bildt, Annelies; Tillmann, Julian; Williams, Penny; Absoud, Michael; Totsika, Vasiliki; (2023) Association of cognitive and adaptive skills with internalizing and externalizing problems in autistic children and adolescents. Autism Research 10.1002/aur.3056. (In press). Green open access
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Emerson, E; Totsika, V; Hatton, C; Hastings, RP; (2023) The mental health and well-being of adolescents with/without intellectual disability in the UK. Epidemiology and Psychiatric Sciences , 32 , Article e67. 10.1017/S204579602300080X. Green open access
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Kouroupa, Athanasia; Allard, Amanda; Gray, Kylie; Hastings, Richard P; Heyne, David; Melvin, Glenn A; Tonge, Bruce; (2023) The association between home learning during COVID-19 lockdowns and subsequent school attendance among children with neurodevelopmental conditions. Child: Care, Health and Development , 49 (5) pp. 846-851. 10.1111/cch.13113. Green open access
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Melvin, GA; Freeman, M; Ashford, LJ; Hastings, RP; Heyne, D; Tonge, BJ; Bailey, T; ... Gray, KM; + view all (2023) Types and correlates of school absenteeism among students with intellectual disability. Journal of Intellectual Disability Research , 67 (4) pp. 375-386. 10.1111/jir.13011. Green open access
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Totsika, V; Hastings, RP; Hatton, C; Emerson, E; (2023) Pathways to social well-being of children with intellectual disability: testing the Family Investment Model. Journal of Intellectual Disability Research 10.1111/jir.13082. Green open access
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Totsika, V; Kouroupa, A; Timmerman, A; Allard, A; Gray, KM; Hastings, RP; Heyne, D; ... Tonge, B; + view all (2023) School Attendance Problems Among Children with Neurodevelopmental Conditions One year Following the Start of the COVID-19 Pandemic. Journal of Autism and Developmental Disorders 10.1007/s10803-023-06025-3. (In press). Green open access
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Totsika, Vasiliki; Sapiets, Suzi; Hastings, Richard P; (2023) Predictors of access to early support in families of children with suspected or diagnosed developmental disabilities in the United Kingdom. Journal of Autism and Developmental Disorders 10.1007/s10803-023-05996-7. (In press). Green open access
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Zabidi, Amira Sofia; Hastings, Richard P; Totsika, Vaso; (2023) Spending leisure time together: Parent child relationship in families of children with an intellectual disability. Research in Developmental Disabilities , 133 , Article 104398. 10.1016/j.ridd.2022.104398. Green open access
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2022

Coulman, Elinor; Gore, Nick; Moody, Gwenllian; Wright, Melissa; Segrott, Jeremy; Gillespie, David; Petrou, Stavros; ... Hastings, Richard; + view all (2022) Early positive approaches to support for families of young children with intellectual disability: the E-PAtS feasibility RCT. Public Health Research , 10 (2) pp. 1-144. 10.3310/HEYY3556. Green open access
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Emerson, Eric; Aitken, Zoe; Totsika, Vaso; King, Tania; Stancliffe, Roger J; Hatton, Chris; Llewellyn, Gwynnyth; ... Kavanagh, Anne; + view all (2022) The impact of the COVID pandemic on working age adults with disability: Meta-analysis of evidence from four national surveys. Health and Social Care in the Community 10.1111/hsc.13882. (In press). Green open access
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Kouroupa, A; Allard, A; Gray, KM; Hastings, RP; Heyne, D; Melvin, GA; Tonge, BJ; (2022) Home schooling during the COVID-19 pandemic in the United Kingdom: The experience of families of children with neurodevelopmental conditions. Frontiers in Education , 7 , Article 974558. 10.3389/feduc.2022.974558. Green open access
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Lim, Amanda; Totsika, Vaso; Ali, Afia; (2022) Analysing trends of psychiatric disorders, treatment and service use across time in adults with borderline intellectual impairment: A cross-sectional study of private households. Journal of Psychiatric Research , 151 pp. 339-346. 10.1016/j.jpsychires.2022.04.026. Green open access
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Paulauskaite, Laura; Totsika, Vasiliki; Rivas, Carol; (2022) Relationships and Sex Education Outcomes for Students With Intellectual Disability: Protocol for the Development of a Core Outcome Set. JMIR Research Protocols , 11 (11) , Article e39921. 10.2196/39921. Green open access
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Paulauskaite, Laura; Totsika, Vaso; Rivas, Carol; (2022) Relationships and Sex Education Outcomes for Students With Intellectual Disability: Protocol for the Development of a Core Outcome Set. JMIR Publications: Toronto, ON, Canada.

Sapiets, Suzi J; Hastings, Richard P; Stanford, Catherine; Totsika, Vasiliki; (2022) Families' Access to Early Intervention and Supports for Children With Developmental Disabilities. Journal of Early Intervention 10.1177/10538151221083984. (In press). Green open access
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Totsika, Vasiliki; Liew, Ashley; Absoud, Michael; Adnams, Colleen; Emerson, Eric; (2022) Mental health problems in children with intellectual disability. The Lancet Child & Adolescent Health , 6 (6) pp. 432-444. 10.1016/S2352-4642(22)00067-0. Green open access
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2021

Bailey, T; Hastings, RP; Totsika, V; (2021) COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design. Journal of Intellectual Disability Research 10.1111/jir.12818. (In press). Green open access
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Coulman, E; Gore, N; Moody, G; Wright, M; Segrott, J; Gillespie, D; Petrou, S; ... Hastings, RP; + view all (2021) Early Positive Approaches to Support (E-PAtS) for Families of Young Children With Intellectual Disability: A Feasibility Randomised Controlled Trial. Frontiers in Psychiatry , 12 , Article 729129. 10.3389/fpsyt.2021.729129. Green open access
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Emerson, E; Stancliffe, R; Hatton, C; Llewellyn, G; King, T; Totsika, V; Aitken, Z; (2021) The impact of disability on employment and financial security following the outbreak of the 2020 COVID-19 pandemic in the UK. Journal of Public Health , 43 (3) pp. 472-478. 10.1093/pubmed/fdaa270. Green open access
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Emerson, E; Totsika, V; Aitken, Z; King, T; Hastings, RP; Hatton, C; Stancliffe, RJ; ... Kavanagh, A; + view all (2021) Vaccine hesitancy among working-age adults with/without disability in the UK. Public Health , 200 pp. 106-108. 10.1016/j.puhe.2021.09.019. Green open access
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Jess, M; Flynn, S; Bailey, T; Hastings, RP; Totsika, V; (2021) Failure to replicate a robust Down syndrome advantage for maternal well-being. Journal of Intellectual Disability Research 10.1111/jir.12808. (In press). Green open access
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Kavanagh, A; Hatton, C; Stancliffe, RJ; Aitken, Z; King, T; Hastings, R; Totsika, V; ... Emerson, E; + view all (2021) Health and healthcare for people with disabilities in the UK during the COVID-19 pandemic. Disability and Health Journal , Article 101171. 10.1016/j.dhjo.2021.101171. (In press). Green open access
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Langley, E; Totsika, V; Hastings, RP; Bailey, T; (2021) Family Relationships and Their Associations With Perceptions of Family Functioning in Mothers of Children With Intellectual Disability. American Journal on Intellectual and Developmental Disabilities , 126 (3) pp. 187-202. 10.1352/1944-7558-126.3.187. Green open access
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Lindsay, G; Conlon, G; Totsika, V; Gray, G; Cullen, MA; (2021) "The impact of mediation on resolution of disagreements around special educational needs: Effectiveness and cost effectiveness". Research Papers in Education , 36 (3) pp. 275-298. 10.1080/02671522.2019.1677756. Green open access
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Murray, CA; Hastings, RP; Totsika, V; (2021) Clinical utility of the parent-reported Strengths and Difficulties Questionnaire as a screen for emotional and behavioural difficulties in children and adolescents with intellectual disability. The British Journal of Psychiatry , 218 (6) pp. 323-325. 10.1192/bjp.2020.224. Green open access
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Sheehan, R; Dalton-Locke, C; Ali, A; Vera San Juan, N; Totsika, V; Hassiotis, A; (2021) Effects of the COVID-19 pandemic on mental healthcare and services: results of a UK survey of front-line staff working with people with intellectual disability and/or autism. BJPsych Bulletin 10.1192/bjb.2021.52. (In press). Green open access
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Totsika, V; Emerson, E; Hastings, RP; Hatton, C; (2021) The impact of the COVID-19 pandemic on the health of adults with intellectual impairment: evidence from two longitudinal UK surveys. Journal of Intellectual Disability Research 10.1111/jir.12866. (In press). Green open access
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2020

Bowring, DL; Totsika, V; Hastings, RP; Toogood, S; (2020) Outcomes from a community-based Positive Behavioural Support team for children and adults with developmental disabilities. Journal of Applied Research in Intellectual Disabilities , 33 (2) pp. 193-203. 10.1111/jar.12660. Green open access
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Coulman, E; Hastings, R; Gore, N; Gillespie, D; McNamara, R; Petrou, S; Segrott, J; ... Totsika, V; + view all (2020) The Early Positive Approaches to Support (E-PAtS) study: study protocol for a feasibility cluster randomised controlled trial of a group programme (E-PAtS) for family caregivers of young children with intellectual disability. Pilot and Feasibility Studies , 6 , Article 147. 10.1186/s40814-020-00689-9. Green open access
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Gemegah, E; Hartas, D; Totsika, V; (2020) Public attitudes to people with ASD: contact, knowledge and ethnicity. Advances in Autism 10.1108/AIA-01-2020-0009. (In press). Green open access
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Grey, JM; Totsika, V; Hastings, RP; (2020) Placement decisions of families co-residing with an adult relative with an intellectual disability. Journal of Intellectual and Developmental Disability , 45 (2) pp. 167-175. 10.3109/13668250.2019.1608816. Green open access
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Hastings, RP; Totsika, V; Hayden, NK; Murray, CA; Jess, M; Langley, E; Margetson, JK; (2020) 1000 Families Study, a UK multiwave cohort investigating the well-being of families of children with intellectual disabilities: cohort profile. BMJ Open , 10 (2) , Article e032919. 10.1136/bmjopen-2019-032919. Green open access
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Jess, M; Bailey, T; Pit-ten Cate, IM; Totsika, V; Hastings, RP; (2020) Measurement invariance of the Positive Gains Scale in families of children with and without disabilities. Research in Developmental Disabilities , 103 , Article 103662. 10.1016/j.ridd.2020.103662. Green open access
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Lofthouse, RE; Golding, L; Totsika, V; Hastings, RP; Lindsay, WR; (2020) Predicting aggression in adults with intellectual disability: A pilot study of the predictive efficacy of the Current Risk of Violence and the Short Dynamic Risk Scale. Journal of Applied Research in Intellectual Disabilities , 33 (4) pp. 702-710. 10.1111/jar.12665. Green open access
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Stanford, CE; Totsika, V; Hastings, RP; (2020) ‘Above and beyond’: The perceptions of mothers of children with autism about ‘good practice’ by professionals and services. Research in Autism Spectrum Disorders , 77 , Article 101615. 10.1016/j.rasd.2020.101615. Green open access
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Totsika, V; Hastings, RP; Dutton, Y; Worsley, A; Melvin, G; Gray, K; Tonge, B; (2020) Types and correlates of school non-attendance in students with autism spectrum disorders. Autism , 24 (7) pp. 1639-1649. 10.1177/1362361320916967. Green open access
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Totsika, V; Hastings, RP; Emerson, E; Hatton, C; (2020) Early Years Parenting Mediates Early Adversity Effects on Problem Behaviors in Intellectual Disability. Child Development , 91 (3) e649-e664. 10.1111/cdev.13273. Green open access
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Westlake, F; Hassiotis, A; Unwin, G; Totsika, V; (2020) The role of behaviour problems in screening for mental ill-health in adults with intellectual disability. European Journal of Psychiatry 10.1016/j.ejpsy.2020.11.002. (In press). Green open access
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2019

Alqazlan, S; Alallawi, B; Totsika, V; (2019) Post-secondary education for young people with intellectual disabilities: A systematic review of stakeholders' experiences. Educational Research Review , 28 , Article 100295. 10.1016/j.edurev.2019.100295. Green open access
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Bailey, T; Totsika, V; Hastings, RP; Hatton, C; Emerson, E; (2019) Developmental trajectories of behaviour problems and prosocial behaviours of children with intellectual disabilities in a population-based cohort. Journal of Child Psychology and Psychiatry , 60 (11) pp. 1210-1218. 10.1111/jcpp.13080. Green open access
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Bowring, D; Totsika, V; Hastings, RP; Toogood, S; (2019) Designing specialist community-based behavioural support teams. International Journal of Positive Behavioural Support , 9 (2) pp. 4-15. Green open access
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Hayden, NK; Hastings, RP; Totsika, V; Langley, E; (2019) A Population-Based Study of the Behavioral and Emotional Adjustment of Older Siblings of Children with and without Intellectual Disability. Journal of Abnormal Child Psychology , 47 pp. 1409-1419. 10.1007/s10802-018-00510-5. Green open access
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Langley, E; Totsika, V; Hastings, RP; (2019) Psychological well-being of fathers with and without a child with intellectual disability: a population-based study. Journal of Intellectual Disability Research 10.1111/jir.12692. (In press). Green open access
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Lindsay, G; Totsika, V; Thomas, R; (2019) Evaluating Parent Gym: a community implemented universal parenting programme. Journal of Children's Services , 14 (1) pp. 1-15. 10.1108/JCS-09-2018-0017. Green open access
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Melvin, GA; Heyne, D; Gray, KM; Hastings, RP; Totsika, V; Tonge, BJ; Freeman, MM; (2019) The Kids and Teens at School (KiTeS) Framework: An Inclusive Bioecological Systems Approach to Understanding School Absenteeism and School Attendance Problems. Frontiers in Education , 4 , Article 61. 10.3389/feduc.2019.00061. Green open access
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Pan, X; Totsika, V; Nicholls, G; Paris, A; (2019) Validating GO4KIDDS as a brief measure of adaptive skills in special education settings for children with severe intellectual disability. Journal of Applied Research in Intellectual Disabilities , 32 (2) pp. 280-287. 10.1111/jar.12524. Green open access
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2018

Bellemans, T; Didden, R; Visser, R; Schaafsma, D; Totsika, V; van Busschbach, JT; (2018) Psychomotor therapy for anger and aggression in mild intellectual disability or borderline intellectual functioning: an Intervention Mapping approach. Body, Movement and Dance in Psychotherapy , 13 (4) pp. 234-250. 10.1080/17432979.2018.1471006. Green open access
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Bowring, DL; Totsika, V; Hastings, RP; Toogood, S; (2018) Toward data-based clinical decision making for adults with challenging behavior using the Behavior Problems Inventory-Short Form (BPI-S). Tizard Learning Disability Review , 23 (2) pp. 103-110. 10.1108/TLDR-06-2017-0025. Green open access
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Flynn, S; Totsika, V; Hastings, RP; Hood, K; Toogood, S; Felce, D; (2018) Effectiveness of Active Support for adults with intellectual disability in residential settings: Systematic review and meta‐analysis. Journal of Applied Research in Intellectual Disabilities , 31 (6) pp. 983-998. 10.1111/jar.12491. Green open access
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Gray, GR; Totsika, V; Lindsay, G; (2018) Sustained Effectiveness of Evidence-based Parenting Programmes After the Research Trial Ends. Frontiers in Psychology , 9 , Article 2035. 10.3389/fpsyg.2018.02035. Green open access
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Grey, JM; Totsika, V; Hastings, RP; (2018) Living with family: perceptions of health and subjective well-being of adults with an intellectual disability. Journal of Intellectual Disability Research , 62 (6) pp. 474-485. 10.1111/jir.12479. Green open access
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Grey, JM; Totsika, V; Hastings, RP; (2018) Physical and Psychological Health of Family Carers Co-residing With an Adult Relative With an Intellectual Disability. Journal of Applied Research in Intellectual Disabilities , 31 (S2) pp. 191-202. 10.1111/jar.12353. Green open access
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Jess, M; Totsika, V; Hastings, RP; (2018) Maternal Stress and the Functions of Positivity in Mothers of Children with Intellectual Disability. Journal of Child and Family Studies , 27 (11) pp. 3753-3763. 10.1007/s10826-018-1186-1. Green open access
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Jones, L; Gold, E; Totsika, V; Hastings, RP; Jones, M; Griffiths, A; Silverton, S; (2018) A mindfulness parent well-being course: evaluation of outcomes for parents of children with autism and related disabilities recruited through special schools. European Journal of Special Needs Education , 33 (1) pp. 16-30. 10.1080/08856257.2017.1297571. Green open access
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Vagenas, D; Totsika, V; (2018) Modelling correlated data: Multilevel models and generalized estimating equations and their use with data from research in developmental disabilities. Research in Developmental Disabilities , 81 pp. 1-11. 10.1016/j.ridd.2018.04.010. Green open access
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Vereenooghe, L; Flynn, S; Hastings, RP; Adams, D; Chauhan, U; Cooper, S-A; Gore, N; ... Waite, J; + view all (2018) Interventions for mental health problems in children and adults with severe intellectual disabilities: a systematic review. BMJ Open , 8 (6) , Article e021911. 10.1136/bmjopen-2018-021911. Green open access
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2017

Bowring, DL; Totsika, V; Hastings, RP; Toogood, S; McMahon, M; (2017) Prevalence of psychotropic medication use and association with challenging behaviour in adults with an intellectual disability. A total population study. Journal of Intellectual Disability Research , 61 (6) pp. 604-617. 10.1111/jir.12359. Green open access
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Flynn, S; Vereenooghe, L; Hastings, RP; Adams, D; Cooper, S-A; Gore, N; Hatton, C; ... Waite, J; + view all (2017) Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. Clinical Psychology Review , 57 pp. 32-44. 10.1016/j.cpr.2017.08.006. Green open access
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Fullerton, JM; Totsika, V; Hain, R; Hastings, RP; (2017) Siblings of children with life-limiting conditions: psychological adjustment and sibling relationships. Child: Care, Health and Development , 43 (3) pp. 393-400. 10.1111/cch.12421. Green open access
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Jess, M; Hastings, RP; Totsika, V; (2017) The construct of maternal positivity in mothers of children with intellectual disability. Journal of Intellectual Disability Research , 61 (10) pp. 928-938. 10.1111/jir.12402. Green open access
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Langley, E; Totsika, V; Hastings, RP; (2017) Parental Relationship Satisfaction in Families of Children with Autism Spectrum Disorder (ASD): A Multilevel Analysis. Autism Research , 10 (7) pp. 1259-1268. 10.1002/aur.1773.

Lindsay, G; Totsika, V; (2017) The effectiveness of universal parenting programmes: the CANparent trial. BMC Psychology , 5 , Article 35. 10.1186/s40359-017-0204-1. Green open access
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Lofthouse, R; Golding, L; Totsika, V; Hastings, R; Lindsay, W; (2017) How effective are risk assessments/measures for predicting future aggressive behaviour in adults with intellectual disabilities (ID): A systematic review and meta-analysis. Clinical Psychology Review , 58 pp. 76-85. 10.1016/j.cpr.2017.10.001. Green open access
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Totsika, V; Jones, R; (2017) Changing students’ attitudes to people with intellectual disabilities: findings from a natural experiment. The Bulletin of the Faculty for People with Intellectual Disabilities , 15 (1) Green open access
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Totsika, V; Mandair, S; Lindsay, G; (2017) Comparing the Effectiveness of Evidence-Based Parenting Programs on Families with and without Children with Special Educational Needs: Short-term and Long-term Gains. Frontiers in Education , 2 , Article 7. 10.3389/feduc.2017.00007. Green open access
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2016

Bowring, DL; Totsika, V; Hastings, RP; Toogood, S; Griffith, GM; (2016) Challenging behaviours in adults with an intellectual disability: A total population study and exploration of risk indices. British Journal of Clinical Psychology , 56 (1) pp. 16-32. 10.1111/bjc.12118. Green open access
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Totsika, V; Hastings, RP; Vagenas, D; (2016) Informal caregivers of people with an intellectual disability in England: health, quality of life and impact of caring. Health & Social Care in the Community , 25 (3) pp. 951-961. 10.1111/hsc.12393. Green open access
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2006

Sylva, K; Taggart, B; Siraj-Blatchford, I; Totsika, V; Ereky-Stevens, K; Gilden, R; Bell, D; (2006) Curricular Quality and Day-To-Day Learning Activities in Pre-School. International Journal of Early Years Education , 15 (1) pp. 49-65. 10.1080/09669760601106968. Green open access
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This list was generated on Sun Dec 21 06:11:03 2025 GMT.