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Physical and Psychological Health of Family Carers Co-residing With an Adult Relative With an Intellectual Disability

Grey, JM; Totsika, V; Hastings, RP; (2018) Physical and Psychological Health of Family Carers Co-residing With an Adult Relative With an Intellectual Disability. Journal of Applied Research in Intellectual Disabilities , 31 (S2) pp. 191-202. 10.1111/jar.12353. Green open access

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Abstract

Background Providing long‐term care to an adult relative with intellectual disability can impact negatively on caregivers’ health and well‐being. Methods Data were collected via online and postal questionnaires on 110 family carers’ physical and psychological health, family stress and perceived positive gains from caring. Psychological adaptation and carers’ satisfaction with available support were also examined. Results Study participants reported more health problems than general populations. Higher support needs of care recipients were associated with increased family stress. Carers being female were associated with lower family stress. Older age and better socio‐economic position were associated with better psychological outcomes. Other associations were consistent with psychological adaption and perceived helpfulness of support buffering negative outcomes and facilitating positive gains from caring. Conclusions Family carers of adults with intellectual disability appear to experience poorer health outcome than population norms. Adaption to the caregiving role may buffer negative outcomes. Further large scale, population‐based, longitudinal research is needed.

Type: Article
Title: Physical and Psychological Health of Family Carers Co-residing With an Adult Relative With an Intellectual Disability
Open access status: An open access version is available from UCL Discovery
DOI: 10.1111/jar.12353
Publisher version: https://doi.org/10.1111/jar.12353
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: adults, family carers, health, intellectual disabilities, positive gains, well‐being
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10060578
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