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Placement decisions of families co-residing with an adult relative with an intellectual disability

Grey, JM; Totsika, V; Hastings, RP; (2020) Placement decisions of families co-residing with an adult relative with an intellectual disability. Journal of Intellectual and Developmental Disability , 45 (2) pp. 167-175. 10.3109/13668250.2019.1608816. Green open access

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Abstract

Background: Placement behaviours of families of adults with intellectual disabilities has received little or no attention of researches to date. // Methods: A prospective design was adopted to examine changes in placement decisions of 75 family carers over a 12-month period. Factors associated with changes were also examined. // Results: Over 12 months, 30 families moved closer to considering an out of home placement. Of these 14 had placed their relative in out of home care. Proactive coping strategies were significantly associated with an increased likelihood of continued home care. // Conclusion: While the results were similar to studies with children with intellectual disability (ID) or autism spectrum disorder (ASD), a move out-of-home occurred more quickly for adults. This may reflect current social policy and societal attitudes where moving out of home is more normative for adults with ID. The lack of association with all but one carer or care recipient factors suggest that changes in placement tendencies for adults may differ from that of children.

Type: Article
Title: Placement decisions of families co-residing with an adult relative with an intellectual disability
Open access status: An open access version is available from UCL Discovery
DOI: 10.3109/13668250.2019.1608816
Publisher version: https://doi.org/10.3109/13668250.2019.1608816
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Family carers, adults, intellectual disability, placement decisions
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10078097
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