Flynn, S;
Vereenooghe, L;
Hastings, RP;
Adams, D;
Cooper, S-A;
Gore, N;
Hatton, C;
... Waite, J; + view all
(2017)
Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review.
Clinical Psychology Review
, 57
pp. 32-44.
10.1016/j.cpr.2017.08.006.
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Abstract
Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.
| Type: | Article |
|---|---|
| Title: | Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.cpr.2017.08.006 |
| Publisher version: | https://doi.org/10.1016/j.cpr.2017.08.006 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Intellectual disabilities, Mental health, Mental illness, Psychiatric disorder, Mental well-being, Measurement |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10062143 |
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