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Number of items: 61.

Article

Amador, S; Rapaport, P; Lang, I; Sommerlad, A; Mukadam, N; Stringer, A; Hart, N; ... Livingston, G; + view all (2021) Implementation of START (STrAtegies for RelaTives) for dementia carers in the third sector: Widening access to evidence-based interventions. PLoS ONE , 16 (6) , Article e0250410. 10.1371/journal.pone.0250410. Green open access
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Burton, A; Rapaport, P; Palomo, M; Lord, K; Budgett, J; Barber, J; Hunter, R; ... NIDUS study team, .; + view all (2021) Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial. Trials , 22 (1) , Article 865. 10.1186/s13063-021-05851-z. Green open access
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Burton, Alexandra; Rapaport, Penny; Palomo, Marina; Lord, Kathryn; Budgett, Jessica; Barber, Julie; Hunter, Rachael; ... Cooper, Claudia; + view all (2024) Correction: Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial. [Corrigendum]. Trials , 25 (1) , Article ARTN 18. 10.1186/s13063-023-07768-1. Green open access
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Carter, Christine; James, Tiffeny; Higgs, Paul; Cooper, Claudia; Rapaport, Penny; (2022) Understanding the subjective experiences of memory concern and MCI diagnosis: A scoping review. Dementia 10.1177/14713012221147710. (In press). Green open access
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Cooper, C; Aguirre, E; Barber, JA; Bass, N; Brodaty, H; Burton, A; Higgs, P; ... Rapaport, P; + view all (2020) APPLE-Tree (Active Prevention in People at risk of dementia: Lifestyle, bEhaviour change and Technology to REducE cognitive and functional decline) programme: protocol. International Journal of Geriatric Psychiatry , 35 (8) pp. 811-819. 10.1002/gps.5249. Green open access
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Cooper, C; Barber, J; Griffin, M; Rapaport, P; Livingston, G; (2016) Effectiveness of START psychological intervention in reducing abuse by dementia family carers: randomized controlled trial. International Psychogeriatrics , 28 (6) pp. 881-887. 10.1017/S1041610215002033. Green open access
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Cooper, C; Cenko, B; Dow, B; Rapaport, P; (2017) A systematic review evaluating the impact of paid home carer training, supervision, and other interventions on the health and well-being of older home care clients. International Psychogeriatrics , 29 (4) pp. 595-604. 10.1017/S1041610216002386. Green open access
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Cooper, C; Mansour, H; Carter, C; Rapaport, P; Morgan-Trimmer, S; Marchant, NL; Poppe, M; ... Palomo, M; + view all (2021) Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic. Dementia , Article 14713012211014382. 10.1177/14713012211014382. Green open access
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Cooper, C; Marston, L; Barber, J; Livingston, D; Rapaport, P; Higgs, P; Livingston, G; (2018) Do care homes deliver person-centred care? A cross-sectional survey of staff-reported abusive and positive behaviours towards residents from the MARQUE (Managing Agitation and Raising Quality of Life) English national care home survey. PLoS One , 13 (3) , Article e0193399. 10.1371/journal.pone.0193399. Green open access
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Cooper, C; Rapaport, P; Robertson, S; Marston, L; Barber, J; Manela, M; Livingston, G; (2017) Relationship between speaking English as a second language and agitation in people with dementia living in care homes: Results from the MARQUE (Managing Agitation and Raising Quality of life) English national care home survey. International Journal of Geriatric Psychiatry 10.1002/gps.4786. Green open access
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Dar, Ayesha; Budgett, Jessica; Zabihi, Sedigheh; Whitfield, Ellenyd; Lang, Iain; Rapaport, Penny; Heath, Bronte; ... Cooper, Claudia; + view all (2024) Pre-implementation planning for a new personalised, dementia post-diagnostic support intervention: exploring the perspective of professional stakeholders. BJPsych Open , 10 (5) , Article e139. 10.1192/bjo.2024.733. Green open access
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Gaber, Sophie Nadia; Mattsson, Elisabet; Klarare, Anna; Dawes, Joanna; Rapaport, Penny; (2025) An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness. The Gerontologist , 65 (4) , Article gnaf021. 10.1093/geront/gnaf021. Green open access
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Guerra, Stefanny; James, Tiffeny; Rapaport, Penny; Livingston, Gill; (2022) Experience of UK Latin Americans caring for a relative living with dementia: A qualitative study of family carers. Dementia , Article 14713012221076954. 10.1177/14713012221076954. (In press). Green open access
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Hassiotis, Angela; Melville, Craig; Jahoda, Andrew; Strydom, Andre; Cooper, Sally-Ann; Taggart, Laurence; Cooper, Vivien; ... Marston, Louise; + view all (2022) Estimation of the minimal clinically important difference on the Aberrant Behaviour Checklist-Irritability (ABC-I) for people with intellectual disabilities who display aggressive challenging behaviour: A triangulated approach. Research in Developmental Disabilities , 124 , Article 104202. 10.1016/j.ridd.2022.104202. Green open access
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Herat-Gunaratne, R; Cooper, C; Mukadam, N; Rapaport, P; Leverton, M; Higgs, P; Samus, Q; (2020) "In the Bengali Vocabulary, There Is No Such Word as Care Home": Caring Experiences of UK Bangladeshi and Indian Family Carers of People Living With Dementia at Home. The Gerontologist , 60 (2) pp. 331-339. 10.1093/geront/gnz120. Green open access
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Kadri, A; Rapaport, P; Livingston, G; Cooper, C; Robertson, S; Higgs, P; (2018) Care workers, the unacknowledged persons in person-centred care: A secondary qualitative analysis of UK care home staff interviews. PLoS One , 13 (7) , Article e0200031. 10.1371/journal.pone.0200031. Green open access
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Kashimura, M; Rapaport, P; Nomura, T; Ishiwata, A; Tateno, A; Nogami, A; (2020) Acceptability and feasibility of a Japanese version of STrAtegies for RelaTives (START-J): A manualized coping strategy program for family caregivers of relatives living with dementia. Dementia 10.1177/1471301220919938. (In press). Green open access
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Kelleher, Daniel; Lord, Kathryn; Duffy, Larisa; Rapaport, Penny; Barber, Julie; Manthorpe, Jill; Leverton, Monica; ... Cooper, Claudia; + view all (2022) Time to reflect is a rare and valued opportunity; a pilot of the NIDUS-professional dementia training intervention for homecare workers during the Covid-19 pandemic. Health and Social Care in the Community 10.1111/hsc.13737. Green open access
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Kelleher, Daniel; Windle, Karen; Randell, Rebecca; Lord, Kathryn; Duffy, Larisa; Aktah, Amirah; Budgett, Jessica; ... Cooper, Claudia; + view all (2024) A process evaluation of the NIDUS-Professional dementia training intervention for UK homecare workers. Age and Ageing , 53 (5) , Article afae109. 10.1093/ageing/afae109. Green open access
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Kinnunen, KM; Rapaport, P; Webster, L; Barber, J; Kyle, SD; Hallam, B; Cooper, C; ... Livingston, G; + view all (2018) A manual-based intervention for carers of people with dementia and sleep disturbances: an acceptability and feasibility RCT. Health Technology Assessment , 22 (71) pp. 1-408. 10.3310/hta22710. Green open access
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Knapp, M; King, D; Romeo, R; Schehl, B; Barber, J; Griffin, M; Rapaport, P; ... Livingston, G; + view all (2013) Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial. BMJ , 347 , Article f6342. 10.1136/bmj.f6342. Green open access
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Koren, Tala; Fisher, Emily; Webster, Lucy; Livingston, Gill; Rapaport, Penny; (2023) Prevalence of sleep disturbances in people with dementia living in the community: A systematic review and meta-analysis. Ageing Research Reviews , 83 , Article 101782. 10.1016/j.arr.2022.101782. Green open access
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Laybourne, A; Livingston, G; Cousins, S; Rapaport, P; Lambe, K; La Frenais, F; Savage, H; ... Cooper, C; + view all (2018) Carer coping and resident agitation as predictors of quality of life in care home residents living with dementia: Managing Agitation and Raising Quality of Life (MARQUE) English national care home prospective cohort study. International Journal of Geriatric Psychiatry 10.1002/gps.4994. (In press). Green open access
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Laybourne, A; Rapaport, P; Livingston, G; (2021) Long-term implementation of the Managing Agitation and Raising QUality of lifE intervention in care homes: A qualitative study. International Journal of Geriatric Psychiatry , 36 (8) pp. 1252-1263. 10.1002/gps.5519. Green open access
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Leverton, M; Burton, A; Beresford-Dent, J; Rapaport, P; Manthorpe, J; Azocar, I; Giebel, C; ... Cooper, C; + view all (2021) Supporting independence at home for people living with dementia: a qualitative ethnographic study of homecare. Social Psychiatry and Psychiatric Epidemiology , 56 pp. 2323-2336. 10.1007/s00127-021-02084-y. Green open access
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Leverton, M; Burton, A; Beresford-Dent, J; Rapaport, P; Manthorpe, J; Mansour, H; Guerra Ceballos, S; ... Cooper, C; + view all (2021) 'You can't just put somebody in a situation with no armour'. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia. Dementia 10.1177/14713012211023676. (In press). Green open access
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Leverton, M; Burton, A; Rees, J; Rapaport, P; Manthorpe, J; Downs, M; Beresford-Dent, J; (2019) A systematic review of observational studies of adult home care. Health and Social Care in the Community , 27 (6) pp. 1388-1400. 10.1111/hsc.12831. Green open access
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Liu, Kathy Y; Ivenso, Chineze; Howard, Rebecca; Rapaport, Penny; Reeves, Suzanne; Banerjee, Sube; Schneider, Lon S; ... Agitation MCID Study Group, .; + view all (2025) Three approaches to determining clinically meaningful benefit on the Cohen-Mansfield Agitation Inventory in dementia clinical trials for agitation. Alzheimer's & Dementia: Translational Research & Clinical Interventions , 11 (2) , Article e70099. 10.1002/trc2.70099. Green open access
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Livingston, Gill; Rapaport, Penny; Sekitani, Tsuyoshi; Manela, Monica; Sommerlad, Andrew; Nezu, Toshikazu; Yu, Ruan-Ching; ... Ikeda, Manabu; + view all (2025) EEG Monitoring at Home for Sleep: A Feasibility and Usability Study. American Journal of Geriatric Psychiatry 10.1016/j.jagp.2025.11.018. (In press). Green open access
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Livingston, G; Barber, J; Marston, L; Rapaport, P; Livingston, D; Cousins, S; Robertson, S; ... Cooper, C; + view all (2017) Prevalence of and associations with agitation in residents with dementia living in care homes: MARQUE cross-sectional study. BJPsych Open , 3 (4) pp. 171-178. 10.1192/bjpo.bp.117.005181. Green open access
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Livingston, G; Barber, J; Marston, L; Stringer, A; Panca, M; Hunter, R; Cooper, C; ... Rapaport, P; + view all (2019) Clinical and cost-effectiveness of the Managing Agitation and Raising Quality of Life (MARQUE) intervention for agitation in people with dementia in care homes: a single-blind, cluster-randomised controlled trial. The Lancet Psychiatry , 6 (4) pp. 293-304. 10.1016/S2215-0366(19)30045-8. Green open access
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Livingston, G; Barber, J; Rapaport, P; Knapp, M; Griffin, M; King, D; Livingston, D; ... Cooper, C; + view all (2013) Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial. BMJ , 347 , Article f6276 . 10.1136/bmj.f6276. Green open access
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Livingston, G; Barber, J; Rapaport, P; Knapp, M; Griffin, M; King, D; Romeo, R; ... Cooper, C; + view all (2014) Long-term clinical and cost-effectiveness of psychological intervention for family carers of people with dementia: a single-blind, randomised, controlled trial. LANCET PSYCHIATRY , 1 (7) 539 - 548. 10.1016/S2215-0366(14)00073-X. Green open access
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Livingston, G; Barber, J; Rapaport, P; Knapp, M; Griffin, M; Romeo, R; King, D; ... Cooper, C; + view all (2014) START (STrAtegies for RelaTives) study: a pragmatic randomised controlled trial to determine the clinical effectiveness and cost-effectiveness of a manual-based coping strategy programme in promoting the mental health of carers of people with dementia. Health Technology Assessment , 18 (61) xxvi, 1-241. 10.3310/hta18610. Green open access
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Livingston, G; Barber, JA; Kinnunen, KM; Webster, L; Kyle, SD; Cooper, C; Espie, CA; ... Rapaport, P; + view all (2019) DREAMS-START (Dementia RElAted Manual for Sleep; STrAtegies for RelaTives) for people with dementia and sleep disturbances: a single-blind feasibility and acceptability randomized controlled trial. International Psychogeriatrics , 31 (2) pp. 251-265. 10.1017/S1041610218000753. Green open access
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Livingston, G; Manela, M; O'Keeffe, A; Rapaport, P; Cooper, C; Knapp, M; King, D; ... Barber, J; + view all (2020) Clinical effectiveness of the START (STrAtegies for RelaTives) psychological intervention for family carers and the effects on the cost of care for people with dementia: 6-year follow-up of a randomised controlled trial. The British Journal of Psychiatry , 216 (1) pp. 35-42. 10.1192/bjp.2019.160. Green open access
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Livingston, G; Rapaport, P; (2020) Implementation should now be considered in parallel with designing clinical research. International Psychogeriatrics , 32 (12) pp. 1393-1395. 10.1017/S1041610220001064. Green open access
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Lord, K; Kelleher, D; Ogden, M; Mason, C; Rapaport, P; Burton, A; Leverton, M; ... Cooper, C; + view all (2021) Co-designing complex interventions with people living with dementia and their supporters. Dementia 10.1177/14713012211042466. (In press). Green open access
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Lord, K; Beresford-Dent, J; Rapaport, P; Burton, A; Leverton, M; Walters, K; Lang, I; ... Cooper, C; + view all (2019) Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence. Social Psychiatry and Psychiatric Epidemiology 10.1007/s00127-019-01784-w. (In press). Green open access
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Lord, K; Rapaport, P; Cooper, C; Livingston, G; (2017) Disseminating START: training clinical psychologists and admiral nurses as trainers in a psychosocial intervention for carers of people with dementia's depressive and anxiety symptoms. BMJ Open , 7 (8) , Article e017759. 10.1136/bmjopen-2017-017759. Green open access
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Morse, RM; Lang, I; Rapaport, P; Poppe, M; Morgan-Trimmer, S; Cooper, C; (2024) How might secondary dementia prevention programs work in practice: a pre-implementation study of the APPLE-Tree program. BMC Geriatrics , 24 (1) , Article 188. 10.1186/s12877-024-04762-3. Green open access
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Poppe, M; Mansour, H; Rapaport, P; Palomo, M; Burton, A; Morgan-Trimmer, S; Carter, C; ... Cooper, C; + view all (2020) "Falling through the cracks"; Stakeholders' views around the concept and diagnosis of mild cognitive impairment and their understanding of dementia prevention. International Journal of Geriatric Psychiatry , 35 (11) pp. 1349-1357. 10.1002/gps.5373. Green open access
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Rapaport, P; Burton, A; Palomo, M; Griffiths, J; Kelleher, D; Leverton, M; Vickerstaff, V; ... Cooper, C; + view all (2021) A mixed-methods feasibility study of a goal-focused manualised intervention to support people with dementia to stay living independently at home with support from family carers: NIDUS (New Interventions for Independence in Dementia Study) Family. Aging & Mental Health , 25 (8) pp. 1463-1474. 10.1080/13607863.2020.1845299. Green open access
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Rapaport, Penny; Amador, Sarah; Adeleke, Mariam; Banerjee, Sube; Barber, Julie; Charlesworth, Georgina; Clarke, Christopher; ... Livingston, Gill; + view all (2024) Clinical and cost-effectiveness of DREAMS START (Dementia RElAted Manual for Sleep; STrAtegies for RelaTives) for people living with dementia and their carers: a study protocol for a parallel multicentre randomised controlled trial. BMJ Open , 14 (2) , Article e075273. 10.1136/bmjopen-2023-075273. Green open access
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Rapaport, Penny; Muralidhar, Malvika; Amador, Sarah; Mukadam, Naaheed; Bhojwani, Ankita; Beeson, Charles; Livingston, Gill; (2025) Sleep Disturbances and Dementia in the UK South Asian Community: A Qualitative Study to Inform Future Adaptation of the DREAMS-START Intervention. Geriatrics , 10 (5) , Article 121. 10.3390/geriatrics10050121. Green open access
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Rapaport, P; Burton, A; Leverton, M; Herat-Gunaratne, R; Beresford-Dent, J; Lord, K; Downs, M; ... Cooper, C; + view all (2020) "I just keep thinking that I don't want to rely on people." a qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives. BMC Geriatrics , 20 , Article 5. 10.1186/s12877-019-1406-6. Green open access
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Rapaport, P; Livingston, G; Hamilton, O; Turner, R; Stringer, A; Robertson, S; Cooper, C; (2018) How do care home staff understand, manage and respond to agitation in people with dementia? A qualitative study. BMJ Open , 8 (6) , Article e022260. 10.1136/bmjopen-2018-022260. Green open access
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Rapaport, P; Livingston, G; Murray, J; Mulla, A; Cooper, C; (2017) Systematic review of the effective components of psychosocial interventions delivered by care home staff to people with dementia. BMJ Open , 7 (2) , Article e014177. 10.1136/bmjopen-2016-014177. Green open access
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Rapaport, P; Webster, L; Horsley, R; Kyle, SD; Kinnunen, KM; Hallam, B; Pickett, J; ... Livingston, G; + view all (2018) An intervention to improve sleep for people living with dementia: Reflections on the development and co-production of DREAMS:START (Dementia RElAted Manual for Sleep: STrAtegies for RelaTives). Dementia , 17 (8) pp. 976-989. 10.1177/1471301218789559. Green open access
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Rees, JL; Burton, A; Walters, KR; Leverton, M; Rapaport, P; Herat Gunaratne, R; Beresford-Dent, J; (2020) Exploring how people with dementia can be best supported to manage long-term conditions: a qualitative study of stakeholder perspectives. BMJ Open , 10 (10) , Article e041873. 10.1136/bmjopen-2020-041873. Green open access
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Robertson, S; Cooper, C; Hoe, J; Lord, K; Rapaport, P; Livingston, G; (2019) Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes. International Journal of Geriatric Psychiatry , 34 (12) pp. 1784-1791. 10.1002/gps.5193. Green open access
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Robertson, S; Cooper, C; Hoe, J; Lord, K; Rapaport, P; Marston, L; Cousins, S; ... Livingston, G; + view all (2019) Comparing proxy rated quality of life of people living with dementia in care homes. Psychological Medicine 10.1017/S0033291718003987. (In press). Green open access
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Rosenblad, Andreas Karlsson; Klarare, Anna; Rapaport, Penny; Mattsson, Elisabet; Gaber, Sophie Nadia; Women’s Advisory Board for Inclusion Health; (2024) Health literacy and its association with mental and spiritual well-being among women experiencing homelessness. Health Promotion International , 39 (2) , Article daae019. 10.1093/heapro/daae019. Green open access
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Satake, Yuto; Ishimaru, Daiki; Katsuki, Kunihiko; Rapaport, Penny; Berthouze, Nadia; Howard, Robert; Ikeda, Manabu; (2025) A Week With a Conversational Large Language Model Companion Robot. American Journal of Geriatric Psychiatry , 33 (7) pp. 799-800. 10.1016/j.jagp.2025.03.010.

Scott, I; Cooper, C; Leverton, M; Burton, A; Beresford‐Dent, J; Rockwood, K; Butler, L; (2019) Effects of non-pharmacological interventions on functioning of people living with dementia at home: a systematic review of randomised controlled trials. International Journal of Geriatric Psychiatry , 34 (10) pp. 1386-1402. 10.1002/gps.5127. Green open access
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Sommerlad, A; Manela, M; Cooper, C; Rapaport, P; Livingston, G; (2014) START (STrAtegies for RelaTives) coping strategy for family carers of adults with dementia: qualitative study of participants' views about the intervention. BMJ Open , 4 (6) , Article e005273. 10.1136/bmjopen-2014-005273. Green open access
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Wyman, Danielle; Butler, Laurie T; Morgan-Trimmer, Sarah; Bright, Peter; Barber, Julie; Budgett, Jessica; Walters, Kate; ... Cooper, Claudia; + view all (2024) Process evaluation of a New psychosocial goal-setting and manualised support intervention for Independence in Dementia (NIDUS-Family). Age and Ageing , 53 (8) , Article afae181. 10.1093/ageing/afae181. Green open access
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Book chapter

Sommerlad, A; Rapaport, P; (2021) Promoting Functional Independence in Dementia. In: Frederiksen, K and Waldemar, G, (eds.) Management of Patients with Dementia: The Role of the Physician. (pp. 315-339). Springer: Cham, Switzerland. Green open access
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Thesis

Rapaport, Penny; (2018) Development of an evidence-based intervention to improve agitation for people with dementia in care homes. Doctoral thesis (Ph.D), UCL (University College London). Green open access
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Robertson, Sarah; (2017) Comparing Proxy Rated Quality of Life of People with Dementia in Care Homes. Doctoral thesis (Ph.D), UCL (University College London). Green open access
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Dataset

Livingston, G; Rapaport, P; (2018) Qualitative interviews with care staff for MARQUE study. [Dataset]. UCL Division of Psychiatry: London, UK. Green open access
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This list was generated on Sun Feb 1 01:34:27 2026 GMT.