Wheeler, DC;
Bockenhauer, D;
Day, S;
Devuyst, O;
Guay-Woodford, LM;
Ingelfinger, JR;
Klein, JB;
... Winkelmayer, W; + view all
(2017)
Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference.
Kidney International
, 92
(4)
pp. 796-808.
10.1016/j.kint.2017.06.018.
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Abstract
Rare kidney diseases encompass at least 150 different conditions, most of which are inherited. Although individual rare kidney diseases raise specific issues, as a group these rare diseases can have overlapping challenges in diagnosis and treatment. These challenges include small numbers of affected patients, unidentified causes of disease, lack of biomarkers for monitoring disease progression, and need for complex care. To address common clinical and patient issues among rare kidney diseases, the KDIGO Controversies Conference entitled, Common Elements in Rare Kidney Diseases, brought together a panel of multidisciplinary clinical providers and patient advocates to address five central issues for rare kidney diseases. These issues encompassed diagnostic challenges, management of kidney functional decline and progression of chronic kidney disease, challenges in clinical study design, translation of advances in research to clinical care, and provision of practical and integrated patient support. Thus, by a process of consensus, guidance for addressing these challenges was developed and is presented here.
| Type: | Article |
|---|---|
| Title: | Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference |
| Event: | KDIGO Controversies Conference on Common Elements in Uncommon Kidney Diseases |
| Location: | Amsterdam |
| Dates: | 16 June 2016 - 19 June 2017 |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.kint.2017.06.018 |
| Publisher version: | http://doi.org/10.1016/j.kint.2017.06.018 |
| Language: | English |
| Additional information: | Copyright © 2017, International Society of Nephrology. Published by Elsevier Inc. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
| Keywords: | Chronic kidney disease progression; clinical trials; diagnostics; genetic kidney diseases; practical and integrated patient support; translational care |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Medicine UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Medicine > Renal Medicine |
| URI: | https://discovery.ucl.ac.uk/id/eprint/1574626 |
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