UCL Discovery
UCL home » Library Services » Electronic resources » UCL Discovery

Palliative care for cirrhosis: a UK survey of health professionals' perceptions, current practice and future needs

Low, J; Vickerstaff, VH; Davis, S; Bichard, J; Greenslade, L; Hopkins, K; Marshall, A; ... Jones, L; + view all (2016) Palliative care for cirrhosis: a UK survey of health professionals' perceptions, current practice and future needs. Frontline Gastroenterology , 7 (1) pp. 4-9. 10.1136/flgastro-2015-100613. Green open access

[thumbnail of ESLD-Survey-paper-Frontline-Gastro-revised-FINAL.pdf]
Preview
Text
ESLD-Survey-paper-Frontline-Gastro-revised-FINAL.pdf

Download (487kB) | Preview

Abstract

Objective: To determine the knowledge and practice patterns of a UK cohort of relevant healthcare professionals (HCPs) about delivering palliative care in cirrhosis, and to inform priorities for future research. / Design: An on-line questionnaire survey with closed and open responses. / Setting: HCPs identified from the mailing list of special interest groups in hepatology and gastroenterology (liver), general practice and specialist palliative care (SPC) across the UK. / Results: Of the 6181 potential contacts identified, 517 HCPs responded. Most believed a role exists for SPC in caring for people with cirrhosis, but many SPC HCPs felt ill prepared to provide good care to those facing death. Further training was needed in managing liver-related symptoms, symptom control and end of life issues. All HCP groups wished to increase community provision of palliative care support, but many general practitioners felt unable to manage advanced cirrhosis in the community. There were differences in the optimal trigger for SPC referral with liver HCPs less likely to refer at symptom deterioration. Prognostication, symptom management and service configuration were key areas identified for future research. / Conclusions: All who responded acknowledged the role of SPC in caring for those dying with cirrhosis and need for further training to improve confidence and enable joint working between SPC, general practice and liver teams. Low response rates make it difficult to generalise these findings, which require further validation.

Type: Article
Title: Palliative care for cirrhosis: a UK survey of health professionals' perceptions, current practice and future needs
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/flgastro-2015-100613
Publisher version: http://dx.doi.org/10.1136/flgastro-2015-100613
Language: English
Additional information: This article has been accepted for publication in Frontline Gastroenterology following peer review. The definitive copyedited, typeset version - Low, J; Vickerstaff, VH; Davis, S; Bichard, J; Greenslade, L; Hopkins, K; Marshall, A; (2016) Palliative care for cirrhosis: a UK survey of health professionals' perceptions, current practice and future needs. Frontline Gastroenterology, 7 (1) pp. 4-9 - is available online at: http://dx.doi.org/10.1136/flgastro-2015-100613
Keywords: Palliative care, cirrhosis, hepatology, gastroenterology, primary care
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Medicine
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health
URI: https://discovery.ucl.ac.uk/id/eprint/1470218
Downloads since deposit
178Downloads
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item