Singh, Ilina;
Viding, Essi;
Spencer, Lucienne;
Austin, Charlotte;
Kokan, Zeba R;
Stringaris, Argyris;
(2025)
The need for a science of patient and public involvement and participation in child and adolescent mental health research.
Nature Mental Health
, 3
(11)
pp. 1311-1317.
10.1038/s44220-025-00497-1.
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Abstract
There is an urgent need for a rigorous science of patient and public participation, involvement and engagement (PPIE) in child and adolescent mental health research. In this Perspective we argue that current PPIE practices lack solid theoretical foundations and require systematic evaluation of their epistemic and ethical impacts. We call for the development of clear concepts of ‘lived experience’ and ‘voice’ and the establishment of a shared framework to assess the value of PPIE in advancing discovery science. We end with ten initial questions to advance open, multi-stakeholder dialogue and debate on PPIE in the field.
| Type: | Article |
|---|---|
| Title: | The need for a science of patient and public involvement and participation in child and adolescent mental health research |
| DOI: | 10.1038/s44220-025-00497-1 |
| Publisher version: | https://doi.org/10.1038/s44220-025-00497-1 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher's terms and conditions. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10217611 |
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