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Searching for people with psychosis in the global south: mapping and establishing a case surveillance system in South Africa (PSYMAP-ZN study)

Burns, Jonathan K; Ntlantsana, Vuyokazi; Mkhombo, Tsatsawani; Paruk, Saeeda; Thela, Lindokuhle; Juby, Vidette; Duba, Busisiwe; ... Chiliza, Bonginkosi; + view all (2025) Searching for people with psychosis in the global south: mapping and establishing a case surveillance system in South Africa (PSYMAP-ZN study). Social Psychiatry and Psychiatric Epidemiology 10.1007/s00127-025-03011-1. (In press). Green open access

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Abstract

PURPOSE: Relatively little epidemiological evidence on psychosis from diverse settings in the Global South exists, where many people with untreated psychosis seek help outside of formal health service settings. Here, we report a preliminary mapping study of formal and informal community resources within a catchment area in South Africa that established an infrastructure that could be used to detect a representative sample of individuals with untreated psychosis. METHODS: PSYMAP-ZN is a 3-year study of incidence, clinical presentation and associated risk factors for untreated psychosis in Msunduzi Municipality in South Africa. We conducted a preliminary mapping study of the region in which we aimed to document all potential providers of care (gatekeepers) in both formal (health services) and informal (folk) sectors, with the purpose of enrolling them in a collaborative case surveillance system. We drew on official sources, local knowledge from key stakeholders and utilised snowballing techniques. RESULTS: We established a surveillance system which included (a) all secondary mental health and primary care services (b) the majority of informal providers (including traditional health practitioners, religious institutions) and (c) a wide range of key informants. CONCLUSION: We established a surveillance system which included (a) all secondary mental health and primary care services (b) the majority of informal providers (including traditional health practitioners, religious institutions) and (c) a wide range of key informants.

Type: Article
Title: Searching for people with psychosis in the global south: mapping and establishing a case surveillance system in South Africa (PSYMAP-ZN study)
Open access status: An open access version is available from UCL Discovery
DOI: 10.1007/s00127-025-03011-1
Publisher version: https://doi.org/10.1007/s00127-025-03011-1
Language: English
Additional information: © 2025 Springer Nature. This article is licensed under a Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/).
Keywords: Case finding, Psychosis, Mapping, Incidence, South Africa
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry > Epidemiology and Applied Clinical Research
URI: https://discovery.ucl.ac.uk/id/eprint/10216916
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