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The management of Juvenile Tumour Systems Implants following Limb Salvage Surgery for bone sarcoma: A British Consensus informing best practice and consistent care

O’Keeffe, Rebecca; Massey, Sarah; (2025) The management of Juvenile Tumour Systems Implants following Limb Salvage Surgery for bone sarcoma: A British Consensus informing best practice and consistent care. Clinical Surgical Oncology , Article 100099. 10.1016/j.cson.2025.100099. (In press). Green open access

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Abstract

Aims: The aim of this study was to gain a consensus for best practice of follow up of patients following limb salvage surgery with a Juvenile tumour Systems (JTS) extendible implant to benchmark and guide consistent care. / / Methods: A two-round modified Delphi study was conducted by paediatric sarcoma specialists. They identified 8 areas of follow up care that required consensus agreement. Statements were based around leg length measurement, long-leg X-Rays, joint range of movement, procedure within the lengthening appointment, physiotherapy, shoe raises, training, frequency of appointments. A pre-determined threshold of >70% for consensus, with a threshold of >60% being considered as ‘points to consider’. / / Results: Sixteen professionals and manufacturers consented to be part of the consensus. A total of 63 statements were generated for the initial questionnaire, at the end of which 9 statements reached consensus. The remaining 54 statements were discussed and refined to 31 for the second questionnaire. Following two rounds of questionnaires and web conferences a total of 29 statements reached consensus. / / Conclusion: Paediatric sarcoma specialists have reached expert consensus to provide a framework for consistent follow up management of JTS implants, many of which could be generalised to other non-invasive growing implants. We would recommend that clinicians use these statements to ensure follow-up care is consistent. / /

Type: Article
Title: The management of Juvenile Tumour Systems Implants following Limb Salvage Surgery for bone sarcoma: A British Consensus informing best practice and consistent care
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.cson.2025.100099
Publisher version: https://doi.org/10.1016/j.cson.2025.100099
Language: English
Additional information: © The Author(s), 2025. This is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CC-BY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal. http://creativecommons.org/licenses/by-nc-nd/4.0/
UCL classification: UCL
UCL > Provost and Vice Provost Offices > UCL BEAMS
UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Engineering Science > Dept of Med Phys and Biomedical Eng
URI: https://discovery.ucl.ac.uk/id/eprint/10216365
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