Lecat, Catherine SY;
Bristogiannis, Sotirios;
Mehta, Dipal;
Lwin, Yadanar;
Land, Joanne;
McCourt, Orla;
Dowling, Emma;
... Kyriakou, Charalampia; + view all
(2025)
Current quality of life questionnaires are not relevant for assessing QOL issues in multiple myeloma patients in the era of modern therapies: results from a survey with myeloma patients and myeloma healthcare professionals.
Frontiers in Oncology
, 15
, Article 1656912. 10.3389/fonc.2025.1656912.
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Abstract
As multiple myeloma (MM) patients live longer, maintaining quality of life (QOL) has become an important treatment goal. However, the commonly used general quality of life questionnaires (QOLQs) were developed over 20 years ago. In this survey, 224 MM patients and 48 healthcare professionals (HCPs) were asked to grade the relevance and importance of QOL items from 9 validated, frequently used MM QOLQs. The results from this survey highlighted significant discrepancy between MM patients’ and HCPs’ perception of important and relevant QOL issues. Whilst MM HCPs found all QOL items relevant, the patients reported a proportion of these items being relevant. These were mainly related to physical functioning, social/family wellbeing, pain and fatigue. This real-world survey stressed the need for the development of an updated QOLQ that is relevant to patients and current MM therapies.
| Type: | Article |
|---|---|
| Title: | Current quality of life questionnaires are not relevant for assessing QOL issues in multiple myeloma patients in the era of modern therapies: results from a survey with myeloma patients and myeloma healthcare professionals |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.3389/fonc.2025.1656912 |
| Publisher version: | https://doi.org/10.3389/fonc.2025.1656912 |
| Language: | English |
| Additional information: | Copyright © 2025 Lecat, Bristogiannis, Mehta, Lwin, Land, McCourt, Dowling, Correia, Rabin, Xu, Sive, Papanikolaou, Popat, Lee, McMillan, Boyle, Yong and Kyriakou. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
| Keywords: | Myeloma, quality of life, PROM (patient reported outcome measurement), healthcare professional (HCP), mutliple myeloma, health related qualitiy of life |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Cancer Institute UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Cancer Institute > Research Department of Haematology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10215165 |
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