Bristowe, Katherine; May, Peter; Pitman, Alexandra; Jiang, Jingjing; Timmins, Liadh; King, Michael; Braybrook, Debbie; ... Harding, Richard; + view all Bristowe, Katherine; May, Peter; Pitman, Alexandra; Jiang, Jingjing; Timmins, Liadh; King, Michael; Braybrook, Debbie; Marshall, Steve; Day, Elizabeth; Clift, Paul; Rose, Ruth; Johnson, Katherine; Almack, Kathryn; Harding, Richard; - view fewer (2025) Unpaid care, time taken off work and healthcare costs before and after partner bereavement among same-gender and different-gender partners: A national population-based study. Palliative Medicine 10.1177/02692163251355796. (In press).

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Abstract

Background: Recent research has demonstrated higher levels of psychological distress for bereaved same-gender partners compared to different-gender partners. Economic outcomes have not yet been examined. // Aim: To examine whether there are differences between same- and different-gender civil partners or spouses (hereafter ‘partners’) in the amount of unpaid care provided in the 3 months pre-bereavement, and time taken off work and formal healthcare used in the 3 months pre- or post-bereavement. // Design: A population-based cross-sectional survey of bereaved partners from England/Wales was conducted including three economic outcomes of interest: unpaid care, time taken off work, and formal healthcare used. We estimated formal healthcare costs using reference costs. We balanced groups on sociodemographic characteristics using propensity score weights and estimated average marginal difference in outcomes between groups using multivariable regressions. // Setting/participants: There were 542 complete cases for primary analysis (220 same-gender partners, 322 different-gender partners). // Results: Same- and different-gender partners provided very high levels of unpaid care pre-bereavement (mean 122 h/week). Of those in paid employment, 85% missed some work pre- and post-bereavement. Same-gender partners had higher formal healthcare costs post-bereavement (+£79, 95% CI: +2 to +156). There were no other significant differences between groups. // Conclusion: The economic burdens of bereavement are substantial. Same-gender partners were associated with more formal healthcare use than different-gender partners post-bereavement, possibly connected to higher levels of psychological distress. Future research should consider longer-term impacts of partner bereavement on health outcomes, explore whether care services are experienced as inclusive, and target ethnically diverse and gender diverse communities.

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