Kate, Vernon; Emma, Maun; Hudson, Briony; (2025) Experiences of palliative and end of life care in the East of England. Health Open Research: online.

Text healthopenres-183185.pdf - Published Version Access restricted to UCL open access staff Download (2MB)

Abstract

The Ambitions for Palliative and End of Life Care 2021-20261 set out a vision to improve end of life care through partnership and collaborative action between organisations at a national and local level throughout England. This study, which was conducted across all six integrated care systems in the region, has highlighted that with only just over half (55%) of people who completed our survey rating their overall experience as ‘Very good’ or ‘Good’, more than one fifth (22%) rating their overall experience of care as ‘Poor’ or ‘Very poor’ and a further 21% only rating it only as ‘Fair’, we have some way to go to achieve this vision in the East of England. The 625 responses in the online survey from people affected by terminal illness – whether as patients, carers, or those recently bereaved – along with the experiences shared by over 50 individuals through interviews and small group discussions, reveal a complex and inconsistent picture of palliative and end of life care in the East of England. This report calls for continued and concerted efforts to fully realise the Ambitions and deliver a consistently high-quality palliative and end of life care experience for all in the East of England.

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