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LISTEN: lived experiences of Long COVID: a social media analysis of mental health and supplement use

Martin, Sam; Van Rensburg, Maya Janse; Le, Huong Thien; Firth, Charlie; Chandrasekar, Abinaya; Clark, Sigrun Eyrunardottir; Vanderslott, Samantha; ... San Juan, Norha Vera; + view all (2025) LISTEN: lived experiences of Long COVID: a social media analysis of mental health and supplement use. Frontiers in Big Data , 8 , Article 1539724. 10.3389/fdata.2025.1539724. Green open access

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Abstract

INTRODUCTION: Long COVID, or Post-Acute Sequelae of SARS-CoV-2 infection (PASC), is a complex condition characterized by a wide range of persistent symptoms that can significantly impact an individual's quality of life and mental health. This study explores public perspectives on the mental health impact of Long COVID and the use of dietary supplements for recovery, drawing on social media content. It uniquely addresses how individuals with Long COVID discuss supplement use in the absence of public health recommendations. METHODS: The study employs the LISTEN method ("Collaborative and Digital Analysis of Big Qual Data in Time Sensitive Contexts"), an interdisciplinary approach that combines human insight and digital analysis software. Social media data related to Long COVID, mental health, and supplement use were collected using the Pulsar Platform. Data were analyzed using the free-text discourse analysis tool Infranodus and collaborative qualitative analysis methods. RESULTS: The findings reveal key themes, including the impact of Long COVID on mental health, occupational health, and the use of food supplements. Analysis of attitudes toward supplement use highlights the prevalence of negative emotions and experiences among Long COVID patients. The study also identifies the need for evidence-based recommendations and patient education regarding supplement use. DISCUSSION: The findings contribute to a better understanding of the complex nature of Long COVID and inform the development of comprehensive, patient-centered care strategies addressing both physical and mental health needs.

Type: Article
Title: LISTEN: lived experiences of Long COVID: a social media analysis of mental health and supplement use
Location: Switzerland
Open access status: An open access version is available from UCL Discovery
DOI: 10.3389/fdata.2025.1539724
Publisher version: https://doi.org/10.3389/fdata.2025.1539724
Language: English
Additional information: © 2025 Martin, Janse Van Rensburg, Le, Firth, Chandrasekar, Clark, Vanderslott, Vindrola-Padros and Vera San Juan. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
Keywords: Long COVID, mental health and social media, LISTEN method, Infranodus discourse analysis, dietary supplements and patient self-management
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci > Department of Targeted Intervention
URI: https://discovery.ucl.ac.uk/id/eprint/10211313
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