Macaulay, Louise;
Saxton, Jennifer;
Ford, Tamsin;
Logan, Stuart;
Harron, Katie;
Gilbert, Ruth;
Zylbersztejn, Ania;
(2025)
Health and education outcomes from adolescence to adulthood for young people with neurodisability and their peers: protocol for a population-based cohort study using linked hospital and education data from England.
BMJ Open
, 15
(3)
, Article e100276. 10.1136/bmjopen-2025-100276.
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Abstract
Introduction: Children and young people with neurodisability (conditions affecting the brain or nervous system, creating functional impairment, eg, autism, learning disabilities, epilepsy, cerebral palsy or attention-deficit/hyperactivity disorder) have more complex health and educational needs than their peers, contributing to higher healthcare use and special educational needs (SEN) provision. To guide policy and improve services, evidence is needed on how health and education support and outcomes change with age for adolescents with and without neurodisability. // Methods and analysis: Using the Education and Child Health Insights from Linked Data (ECHILD) database, which links health and education data across England, we will follow adolescents from the start of secondary school (Year 7) into early adulthood. We will classify children with and without neurodisability recorded in hospital and education records before Year 7, compare their sociodemographic characteristics and describe trends in health and educational outcomes throughout secondary school. We will estimate rates of planned and unplanned healthcare contacts by year of age (11–22 years old), and we will examine changes in trends before, during and after transition to adult healthcare. We will also estimate the proportion of adolescents with school-recorded SEN provision and rates of school absences and exclusions by year of age (11–15 years old) for the two groups. We will explore variation in outcomes by neurodisability subgroup and sociodemographic characteristics and contextualise the findings using existing interview and survey data from children, young people and parents/carers generated in the Health Outcomes of young People throughout Education (HOPE) research programme. // Ethics and dissemination: Ethics approval for analyses of the ECHILD database has been granted previously (20/EE/0180). Findings will be shared with academics, policymakers and stakeholders, and published in open-access journals. Code and metadata will be shared in the ECHILD GitHub repository.
| Type: | Article |
|---|---|
| Title: | Health and education outcomes from adolescence to adulthood for young people with neurodisability and their peers: protocol for a population-based cohort study using linked hospital and education data from England |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1136/bmjopen-2025-100276 |
| Publisher version: | https://doi.org/10.1136/bmjopen-2025-100276 |
| Language: | English |
| Additional information: | Copyright © Author(s) (or their employer(s)) 2025. Re-use permitted under CC BY. Published by BMJ Group. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10206575 |
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