Francis, Cheryl;
(2024)
Cognitive Stimulation Therapy for people with Learning Disabilities and Dementia (CST-IDD). A qualitative exploration of feasibility and acceptability.
Doctoral thesis (D.Clin.Psy), UCL (University College London).
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Abstract
Introduction: National initiatives have emphasised a need to promote person-centred care for people with ID, which should include seeking to support and improve their subjective experiences of life (also known as ‘positive psychology’) and overall mental health. However, there is little emphasis on person-centred outcomes for people with dementia and ID, with measures that are often completed by carers without a consideration of the subjective experiences of the person with ID and dementia. Outcome measures relating to life satisfaction, quality of life and related outcomes alongside mental health outcomes are limited for individuals with ID and dementia. In the context of national strategy (Department of Health and Social Care 2001; 2010) to improve the development of person-centred care initiatives for people with ID, given their increased risk of developing dementia, there is a need for suitable measures that relate to person-centred outcomes. The current review aimed to identify and methodologically appraise existing positive psychology and mental health outcome measures for people with ID and dementia. / Method: A systematic review was carried out by searching three databases (MEDLINE, PsychInfo and Web of Science) by title and abstract. Studies were screened out by title, abstract and full text. The COSMIN risk of bias checklist was used to assess methodological quality. / Results: Seven ‘positive psychology’ outcome measures were identified, of which six measured ‘quality of life’ and one measured ‘goal attainment’. Four mental health outcome measures were identified of which two measured ‘anxiety and depression’, and two measured general mental health difficulties. A total of twelve studies were suitable for inclusion. All included studies were either ‘inadequate’ in overall methodological quality and/or did not include more than two (out of ten) psychometric properties from the checklist. The methodological quality assessment combined with a narrative synthesis found two suitable positive psychology measure, the QOMID, that was developed for use with people who have ID and dementia, and the QUALID, not developed for use with this population, despite an overall ‘inadequate’ quality rating for both. All other outcome measures either appeared unsuitable for use with people with ID and dementia or required further high-quality research to determine suitability. / Discussion: Limitations of the current review and implications for future research are discussed.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | D.Clin.Psy |
| Title: | Cognitive Stimulation Therapy for people with Learning Disabilities and Dementia (CST-IDD). A qualitative exploration of feasibility and acceptability |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| Additional information: | Copyright © The Author 2024. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10197226 |
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