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Dyslexia concealment in higher education: Exploring students' disclosure decisions in the face of UK universities' approach to dyslexia

Hamilton Clark, Charlotte H; (2024) Dyslexia concealment in higher education: Exploring students' disclosure decisions in the face of UK universities' approach to dyslexia. The Journal of Research in Special Educational Needs 10.1111/1471-3802.12683. (In press). Green open access

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Abstract

This paper explores the lived experience of university students with dyslexia, focusing on identity and self-esteem. The qualitative study used semi-structured interviews with five students with dyslexia and discussions with learning support tutors at four UK universities. Thematic analysis of the interview data revealed the impact of dyslexia's stigma on students' academic self-concept and self-efficacy in their studies, including how students manage stigma through decisions on when and with whom to declare dyslexia: some even rejected study support. Concealing dyslexia led to identity conflict and low self-esteem, compounding students' already low academic self-concept, particularly when dyslexia had been unrecognised through school. The study highlights significant academic, practical and identity consequences for students who hide dyslexia from their peers, subject lecturers or study support. The conclusions outline priorities to lessen dyslexia's stigma at university, increase student agency in their support and open dialogue on dyslexia, particularly important between students with dyslexia and subject lecturers. By exploring dyslexia's identity impacts and disclosure, this paper contributes to wider conversations on increasing the representation, achievement and retention of students with dyslexia.

Type: Article
Title: Dyslexia concealment in higher education: Exploring students' disclosure decisions in the face of UK universities' approach to dyslexia
Location: UK
Open access status: An open access version is available from UCL Discovery
DOI: 10.1111/1471-3802.12683
Publisher version: https://doi.org/10.1111/1471-3802.12683
Language: English
Additional information: Copyright © 2024 The Authors. Journal of Research in Special Educational Needs published by John Wiley & Sons Ltd on behalf of National Association for Special Educational Needs. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
Keywords: dyslexia, identity, stigma, disability, higher education
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Culture, Communication and Media
URI: https://discovery.ucl.ac.uk/id/eprint/10192362
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