Kimber, Rebecca;
Hart, Genny;
Ladyman, Emma;
Richmond, Jane;
Giunti, Paola;
(2023)
Multidisciplinary Management of Progressive Ataxia.
Advances in Clinical Neuroscience & Rehabilitation
, 22
(2)
pp. 17-19.
10.47795/vgop7444.
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Abstract
The National Hospital for Neurology and Neurosurgery (NHNN) hosts a specialist centre for people living with Progressive Ataxias. Patients attend from across the UK for differential diagnosis, specialist opinion, expert assessment and exploration of treatment options. This article discusses the treatment and management considerations of the multi-disciplinary team in the context of a condition with a huge variety of symptoms and limited evidence base for clinically effective treatment. It highlights the importance of tailored treatment focused on symptom management and optimising participation. It also discusses service initiatives that enabled patients continued access to treatment during the COVID-19 pandemic. These initiatives were proven to be very successful and therefore continue to run today.
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