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Interventions for Informal Caregivers of People Living with Dementia: A review of educational interventions for informal caregivers in low- and middle-income countries and an empirical study of a Dementia Awareness for Caregivers course in the United Kingdom

Evans, Isabelle; (2023) Interventions for Informal Caregivers of People Living with Dementia: A review of educational interventions for informal caregivers in low- and middle-income countries and an empirical study of a Dementia Awareness for Caregivers course in the United Kingdom. Doctoral thesis (D.Clin.Psy), UCL (University College London). Green open access

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Abstract

Part One is a systematic literature review of interventions for informal caregivers of people living with dementia in low and middle-income countries. The review focusses on interventions with educational components and includes 18 papers detailing 17 studies. The review includes appraisal of the research quality and comparison of intervention characteristics, outcomes, and educational component features. It highlights the need for more high-quality research into potentially promising caregiver interventions, with group-based, multi-component interventions appearing to be the most effective at this stage. Part Two outlines a feasibility and acceptability study of an online Dementia Awareness for Caregivers course delivered to informal caregivers of people living with dementia in the United Kingdom (UK)(DAC-UK). This paper reports on the quantitative outcomes of the study in terms of recruitment, retention, adherence, and attendance rates as well as exploratory analyses of five caregiver outcome measures, measured at baseline and at follow-up. The results indicate that the DAC-UK course is both feasible and acceptable, with some limitations in terms of attendance and positive trends in terms of impact on quantitative caregiver outcomes. This is a joint project with fellow Trainee Clinical Psychologist, Ria Patel, whose paper analyses the qualitative feedback from interviews with caregivers who attended the DAC-UK course. Part Three is a critical appraisal reflecting on this thesis project. Discussion focusses primarily on Part Two considering personal reflections, the research process, and wider implications and recommendations.

Type: Thesis (Doctoral)
Qualification: D.Clin.Psy
Title: Interventions for Informal Caregivers of People Living with Dementia: A review of educational interventions for informal caregivers in low- and middle-income countries and an empirical study of a Dementia Awareness for Caregivers course in the United Kingdom
Open access status: An open access version is available from UCL Discovery
Language: English
Additional information: Copyright © The Author 2023. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/10180529
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