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Handling sensitive topics ​in partnership with young people: Reflections on collaboration within a configurative systematic review​

Rees, Rebecca; Stokes, Gillian; Bassi, Vidhi; Brady, Louca-Mai; Khatwa, Meena; Dickson, Kelly; (2022) Handling sensitive topics ​in partnership with young people: Reflections on collaboration within a configurative systematic review​. Presented at: What Works Global Summit 2022, Online conference. Green open access

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Abstract

We present reflections on work with a group of young people during a qualitative evidence synthesis about eating disorder related content that can be accessed online. Our aim was to help young peoples’ priorities and concerns be better reflected in the review, so as to better inform the development of policies that affect them. A review team and a small group of young people with experience of this content worked together during the review. Interactive online workshops and other activities helped to refine the review’s focus from an early stage, identified gaps in understanding, informed reviewers’ analyses and affected communication of the review and its findings. Approaches designed to address ethical issues around handling sensitive topics in research were adapted for use in the review and involvement activities. As well as taking steps to promote participation rights for young people, given a pandemic context, the review team made efforts to communicate their own concerns, for example about unanticipated delays. Evaluation findings so far suggest that aiming for a culture of mutual respect can help ensure continued interest for all and support the production of a more impactful systematic review.

Type: Conference item (Presentation)
Title: Handling sensitive topics ​in partnership with young people: Reflections on collaboration within a configurative systematic review​
Event: What Works Global Summit 2022
Location: Online conference
Dates: 18 - 20 October 2022
Open access status: An open access version is available from UCL Discovery
Publisher version: https://wwgs2022.mailchimpsites.com/
Language: English
Keywords: PPI, inclusive research, stakeholder involvement, participation, young advisors
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute
URI: https://discovery.ucl.ac.uk/id/eprint/10173636
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