Sas, Corina;
Lotankar, Yojana;
Adam, Rosalind;
Bradbury, Katherine J;
Cooper, Jonathan;
Hill, Derek L;
Martinez, Veronica;
(2023)
“A Switch Went off in my Whole Body”: Lived Experiences of Fatigue and Post-Exertional Malaise in Long Covid.
In:
Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems.
(pp. p. 15).
ACM: Hamburg, Germany.
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Abstract
The growing HCI agenda on health has focused on different chronic conditions but less so on Long Covid, despite its severe impact on the quality of life. We report findings from 2 workshops with 13 people living with Long Covid, indicating the challenges of making sense of their physical, cognitive, and emotional symptoms, and of monitoring the triggers of post-exertional malaise. While most participants engage in pacing activities for the self-management of fatigue, only a few are aware of the importance of planning all their daily activities and routines in order to avoid post-exertional malaise. We conclude with design implications to support lightweight tracking and sensemaking of fatigue symptoms, novel data analytics for monitoring the triggers of post-exertional malaise and the worsening of symptoms, and support for self-management in order to prevent post-exertional malaise.
| Type: | Proceedings paper |
|---|---|
| Title: | “A Switch Went off in my Whole Body”: Lived Experiences of Fatigue and Post-Exertional Malaise in Long Covid |
| Event: | CHI '23: CHI Conference on Human Factors in Computing Systems |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1145/3544549.3585846 |
| Publisher version: | https://doi.org/10.1145/3544549.3585846 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > UCL BEAMS UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Engineering Science UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Engineering Science > Dept of Med Phys and Biomedical Eng |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10169040 |
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