Roberts, Jennifer Rhiannon;
Windle, Gill;
Story, Anna;
Brotherhood, Emilie V;
Camic, Paul M;
Crutch, Sebastian J;
Stott, Joshua;
... Grillo, Adetola; + view all
(2023)
Dementia in rural settings: a scoping review exploring the personal experiences of people with dementia and their carers.
Ageing & Society
10.1017/S0144686X2300003X.
(In press).
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Abstract
Rural areas tend to be inhabited by more older people and thus have a higher prevalence of dementia. Combined with lower population densities and more sparse geography, rural areas pose numerous barriers and costs relating to support and resource provision. This may leave people with dementia in rural places at a significant disadvantage, leading to a heavy reliance on informal support networks. The present study explores the personal experiences of people living with dementia and carers living in rural areas, seeking to discover both benefits and challenges, as well as recommendations within the literature for improving the lives of those affected by dementia in rural areas. A scoping review following the framework of Arksey and O'Malley identified 60 studies that describe or discuss the personal experience of dementia (either by the person with dementia or carer), in relation to living in rural or remote geographical areas. Four overarching themes were derived, namely the possible benefits of living in a rural community (supportive rural communities), sources of strength described by people affected by dementia in rural areas (managing and coping), detrimental aspects of living in a rural community (rural community challenges) and difficulties with dementia care services. Three further themes yielded recommendations for improving the experience of dementia in rural areas. This review highlights some potential opportunities related to living in rural areas for people living with dementia. These often come with parallel challenges, reflecting a delicate balance between being well-supported and being in crisis for those living in rural areas. Given the limited access to formal services, supporting people with dementia in rural areas requires input and innovation from the people, organisations and services local to those communities.
| Type: | Article |
|---|---|
| Title: | Dementia in rural settings: a scoping review exploring the personal experiences of people with dementia and their carers |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1017/S0144686X2300003X |
| Publisher version: | https://doi.org/10.1017/S0144686X2300003X |
| Language: | English |
| Additional information: | Copyright © The Author(s), 2023. Published by Cambridge University Press. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited. |
| Keywords: | Science & Technology, Life Sciences & Biomedicine, Gerontology, Geriatrics & Gerontology, dementia, rural, scoping review, lived experience, carer, care-giver, QUALITY-OF-LIFE, COGNITIVE IMPAIRMENT, ALZHEIMERS-DISEASE, CAREGIVER DISTRESS, BURDEN, COMMUNITIES, SUPPORT, URBAN, CITIZENSHIP, PERSPECTIVE |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology > Neurodegenerative Diseases |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10167696 |
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