Masterson-Algar, P;
Egan, K;
Flynn, G;
Hughes, G;
Spector, A;
Stott, J;
Windle, G;
(2023)
iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers.
International Journal of Environmental Research and Public Health
, 20
(1)
, Article 127. 10.3390/ijerph20010127.
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Abstract
Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly due to the COVID pandemic, have moved online and have been shown to be acceptable as they are low cost and reduce access barriers. iSupport is an evidence-informed e-health training programme developed by the World Health Organization (WHO) to support adult dementia carers. This paper reports on the co-design of an adapted version of iSupport for young carers. A theoretically driven co-design approach, drawing on the lived experiences of young dementia carers and experts who work with this target group was followed. As a result of this study iSupport for Young Carers was created. It is the first e-health intervention of its kind and aims to support the mental health, knowledge and skills of young dementia carers. In turn, it could improve the quality of the support that service providers can offer, and this can result in increased levels of identification of these young people. The work presented also provides opportunities for other countries and demographic groups to translate and adapt iSupport for Young Carers to their specific cultural context.
| Type: | Article |
|---|---|
| Title: | iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers |
| Location: | Switzerland |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.3390/ijerph20010127 |
| Publisher version: | https://doi.org/10.3390/ijerph20010127 |
| Language: | English |
| Additional information: | © 2022 by the AQuthors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
| Keywords: | co-design, dementia, e-health, young carer, Adult, Humans, Adolescent, Dementia, Caregivers, COVID-19, Mental Health, Telemedicine |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10164183 |
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