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Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review

Scheeren, Anke M; Crane, Laura; Heyworth, Melanie; Pellicano, Elizabeth; (2023) Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review. Current Developmental Disorder Reports , 10 pp. 92-122. 10.1007/s40474-023-00268-6. Green open access

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Abstract

Purpose of Review: The COVID-19 pandemic and its associated restrictions have had a significant impact on people’s everyday lives, including the lives of Autistic adults. We aimed to (a) synthesise all papers currently published on the impact of the COVID-19 pandemic on autistic adults and (b) identify lessons for the care and support of Autistic adults in pandemic and post-pandemic times./ Recent Findings: Fifty-five papers met the inclusion criteria. Most studies focused on the pandemic’s impact on the wellbeing of Autistic adults. Several studies focused on the use of (telehealth) services or the risk of COVID-19 infection/hospitalisation./ Summary: Autistic adults were significantly impacted by the pandemic, both directly as indicated by higher COVID-19 infection and hospitalisation rates, but also indirectly due to severe service disruptions and social restrictions. Even though there were large differences observed both between as well as within individuals in terms of the negative/positive effects of the COVID-19 pandemic, most studies reported a negative effect on Autistic adults’ mental health. We draw several lessons from this review for the future care and support of Autistic adults, all of which must be underpinned by participatory research methods, that is, where Autistic community members are actively involved in setting research questions, testing the acceptability of the methods and interpreting and disseminating the results.

Type: Article
Title: Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review
Open access status: An open access version is available from UCL Discovery
DOI: 10.1007/s40474-023-00268-6
Publisher version: https://doi.org/10.1007/s40474-023-00268-6
Language: English
Additional information: © The Author(s). This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.
Keywords: Autism, Autistic adults, COVID-19, Lockdown, Mental health, Wellbeing
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Psychology and Human Development
URI: https://discovery.ucl.ac.uk/id/eprint/10163764
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