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Finding out you have Type 1 Diabetes: understanding what is known about the development of mental health difficulties in children and young people with Type 1 Diabetes and how they experience being diagnosed

Trigg, Kathryn; (2022) Finding out you have Type 1 Diabetes: understanding what is known about the development of mental health difficulties in children and young people with Type 1 Diabetes and how they experience being diagnosed. Doctoral thesis (D.Clin.Psy), UCL (University College London). Green open access

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Abstract

In 2019, Diabetes UK released a statement requesting more research into the mental health needs of people living with Type 1 Diabetes (T1D). The following thesis aims to add to the evidence base by exploring what may leave Children and Young People (CYP) vulnerable to developing mental health difficulties and how they experience their diagnosis and ensuing period of living with T1D. Part One describes a scoping review, mapping out literature on the development of mental health difficulties in CYP with T1D. Of the publications retrieved, 85 are included in the analysis. Possible factors that leave CYP vulnerable to the development of mental health difficulties are collated into: T1D-related, demographic, personal, systemic, health-related factors and the presence of other mental health difficulties. Findings highlight the need for further systematic reviews and exploration into the impact of the T1D diagnosis on CYP. Part Two describes an Interpretative Phenomenological Analysis (IPA) study into CYPs’ experiences of being diagnosed with T1D and ensuing period of living with T1D, including the healthcare received. Ten adolescents participated. Identified themes are: life becoming uncertain, T1D becoming a reality, adapting to the permanence of T1D, seeing the self as different and the role of others in making life with T1D tolerable. Participants highlighted the emotional impact of their diagnosis and factors that aid or hinder the process of adaption. Part Three speaks to the primary researcher’s reflections on issues surrounding the research process. Personal experiences and assumptions, dilemmas and possible avenues for additional research are discussed.

Type: Thesis (Doctoral)
Qualification: D.Clin.Psy
Title: Finding out you have Type 1 Diabetes: understanding what is known about the development of mental health difficulties in children and young people with Type 1 Diabetes and how they experience being diagnosed
Open access status: An open access version is available from UCL Discovery
Language: English
Additional information: Copyright © The Author 2022. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request.
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL
URI: https://discovery.ucl.ac.uk/id/eprint/10156616
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