Taimeh, Dina Awni Yaqub;
(2022)
Development and validation of a Patient Reported Experience Measure (PREM) for patients with Temporomandibular disorders.
Doctoral thesis (Ph.D), UCL (University College London).
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Abstract
Temporomandibular disorders are a group of conditions which affect the temporomandibular joint, surrounding muscles or both. They can manifest in an array of symptoms such as persistent pain, joint noises, alteration in mandibular movement and limitation in mouth opening. Patient Reported Experience Measures (PREMs) are validated questionnaires that reflect the patient experience while receiving healthcare and aim to capture the experience of the patients to ascertain whether specific aspects of care have or have not occurred. They can be tailored for use in specific settings and conditions such as mental health, rheumatoid arthritis and Parkinson’s disease. A comprehensive search of the literature revealed that no such instrument exists for patients with TMD or indeed chronic facial pain. The aims of this project were: 1. To explore the experiences of temporomandibular disorder patients with the public healthcare services in England. 2. To develop a Patient Reported Experience Measure (PREM) designed for use in a cohort of patients with pain-related temporomandibular disorders. 3. To evaluate the validity and reliability of the designed instrument. A mixed method study was designed to achieve the outlined aims. A qualitative study was conducted in collaboration with 15 TMD patients to explore their experiences with the NHS when seeking treatment for their symptoms. The arising results helped generate the items of the questionnaire. A subsequent series of interviews with seven patients and six healthcare providers evaluated the suitability, relevance and comprehensibility of the suggested items. The following phase was a quantitative prospective study of 139 patients which investigated the structural validity, internal consistency and test-retest reliability of the new tool. The newly developed questionnaire consisted of 21 items and was based on the NHS patient experience framework. Factor analysis revealed a suitable five-factor structure for the instrument, Cronbach-α was 0.7285 indicating good internal consistency, and interclass correlation coefficient was 0.732 indicating good test-retest reliability. PREM-TMD is a brief measure to evaluate the experience of adult patients with pain related TMD within the healthcare services. It can be useful in service evaluation schemes, audits, and clinical research. The outlined psychometric properties are satisfactory, and hence support its use to evaluate the experience of TMD patients in a valid and reliable manner.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | Ph.D |
| Title: | Development and validation of a Patient Reported Experience Measure (PREM) for patients with Temporomandibular disorders |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| Additional information: | Copyright © The Author 2022. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
| UCL classification: | UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10154986 |
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