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“It's about sharing a moment”: Parents' views and experiences of home reading with their autistic children with moderate-to-severe intellectual disabilities

Walker, R; Swain, J; Pellicano, E; (2022) “It's about sharing a moment”: Parents' views and experiences of home reading with their autistic children with moderate-to-severe intellectual disabilities. Research in Developmental Disabilities , 128 , Article 104289. 10.1016/j.ridd.2022.104289. Green open access

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Abstract

BACKGROUND: The home literacy environment plays a critical role in the development of children’s literacy and language development. Little is known, however, about the home literacy environment of autistic children, especially those with moderate-to-severe intellectual disabilities. AIMS: The current study used a sequential mixed-methods design to understand how parents attempt to engage their autistic children in reading activities and support them in learning to read. METHODS AND PROCEDURE: First, 63 parents (53 mothers) whose autistic children attended an autism-specific special school completed a bespoke questionnaire about the home literacy environments for their children (n = 69, age range = 3–11 years, 61 boys, 8 girls). Second, a subsample of parents (n = 19, 15 mothers) participated in focus groups to understand in-depth their views and experiences of home reading with their children (n = 20, age range = 3–11 years, 19 boys, 1 girl). We used reflexive thematic analysis to analyse the focus group data. OUTCOMES AND RESULTS: Across questionnaire and focus group methods, parents were united in considering reading to be an important life skill, a sentiment that was reflected both by their often literacy-rich homes and the ingenuity in their efforts to engage their children in shared home-reading activities – even when such engagement could be challenging. They also emphasised, however, the importance of valuing these activities as an opportunity to “catch a moment” with their child. CONCLUSIONS AND IMPLICATIONS: Parents and teachers should work together to identify ways to enhance autistic children’s engagement in shared home-reading activities, listening to and learning from each other’s experiences and expertise, and to show what is possible within each learning context.

Type: Article
Title: “It's about sharing a moment”: Parents' views and experiences of home reading with their autistic children with moderate-to-severe intellectual disabilities
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.ridd.2022.104289
Publisher version: https://doi.org/10.1016/j.ridd.2022.104289
Language: English
Additional information: © 2022 The Author(s). Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
Keywords: Autism, Reading, Literacy, Parent-child relationships
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Education, Practice and Society
UCL > Provost and Vice Provost Offices > School of Education
URI: https://discovery.ucl.ac.uk/id/eprint/10152094
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