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Endings in paediatric cancer treatment: A qualitative analysis of children's perspectives

Von Werthern, Martha; (2021) Endings in paediatric cancer treatment: A qualitative analysis of children's perspectives. Doctoral thesis (D.Clin.Psy), UCL (University College London). Green open access

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Abstract

Medical advancements in paediatric oncology have made quality of life after cancer increasingly clinically important. Despite this, few guidelines outlining the need and support for children around the end of treatment exist. Moreover, little is currently known about children’s experiences, either of the ending itself, or of how they perceived such endings to be managed. Aim. The current study seeks to explore children’s experiences of the end of their cancer treatment and the meaning they give to such experiences, particularly how endings have been signified and marked. Method. Semi-structured interviews were conducted with seven children who had completed their cancer treatment. Each interview was analysed using an Interpretative Phenomenological Analysis (IPA) framework. Results. Five superordinate themes were generated: ‘the omnipresent end’, ‘the punctuation of endings’, ‘that which is remembered, that which is forgotten’, ‘the voiced and the unvoiced’, and ‘freedom from cancer’. Conclusion. Within their narratives, children highlighted the importance of punctuating and celebrating the end of their treatment, whilst drawing attention to the need of doing this in ways that help children process their experiences and provides space for their voice within this.

Type: Thesis (Doctoral)
Qualification: D.Clin.Psy
Title: Endings in paediatric cancer treatment: A qualitative analysis of children's perspectives
Event: UCL (University College London)
Open access status: An open access version is available from UCL Discovery
Language: English
Additional information: Copyright © The Author 2021. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
URI: https://discovery.ucl.ac.uk/id/eprint/10135476
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