Nano, J;
Carinci, F;
Okunade, O;
Whittaker, S;
Walbaum, M;
Barnard‐Kelly, K;
Barthelmes, D;
... Massi‐Benedetti, M; + view all
(2020)
A standard set of person-centred outcomes for diabetes mellitus: results of an international and unified approach.
Diabetic Medicine
, 37
(12)
pp. 2009-2018.
10.1111/dme.14286.
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Abstract
Aims: To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes. / Methods: We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals. / Results: The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment. / Conclusions: We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way.
| Type: | Article |
|---|---|
| Title: | A standard set of person-centred outcomes for diabetes mellitus: results of an international and unified approach |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1111/dme.14286 |
| Publisher version: | https://doi.org/10.1111/dme.14286 |
| Language: | English |
| Additional information: | Copyright © 2020 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10135226 |
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