Bailey, T;
Hastings, RP;
Totsika, V;
(2021)
COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design.
Journal of Intellectual Disability Research
10.1111/jir.12818.
(In press).
Preview |
Text
jir.12818.pdf - Published Version Download (167kB) | Preview |
Abstract
BACKGROUND: Parents of children with intellectual disability (ID) report comparatively lower levels of well-being than parents of children without ID. Similarly, children with ID, and to a lesser extent their siblings, are reported to show comparatively higher levels of behaviour and emotional problems. Psychological problems may be accentuated by restrictions associated with the COVID-19 pandemic, due to increased social, caring and economic stressors and reduced social support. However, existing studies have not been able to examine the impact of COVID-19 restrictions accounting for pre-COVID levels of well-being in these families. In a naturalistic design, we examined outcomes for parents, siblings and children with ID in a two-wave longitudinal study where Wave 2 data were gathered for some families before and some during COVID-19 restrictions. METHODS: Parents of children with ID who took part in a Wave 2 survey pre-lockdown (n = 294) and during/post-lockdown (n = 103) completed a number of measures about their well-being and the behaviour and emotional problems of both their child with ID and their nearest-in-age sibling. These same measures had also been completed for all families 2-3 years previously in Wave 1 of the study. RESULTS: After accounting for covariates including family socio-economic circumstances, pre-lockdown and post-lockdown groups did not differ on Waves 1 to 2 change for measures of parental psychological distress, life satisfaction, the impact of caregiving on their lives or perceived positive gains; nor child or sibling internalising or externalising behaviour problems. CONCLUSIONS: Findings of the current study indicate that during and shortly after the COVID-19 lockdown in the United Kingdom, well-being in families of children with an ID (as reported by parents) was at similar levels compared with prior to the lockdown period.
Type: | Article |
---|---|
Title: | COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design |
Location: | England |
Open access status: | An open access version is available from UCL Discovery |
DOI: | 10.1111/jir.12818 |
Publisher version: | https://doi.org/10.1111/jir.12818 |
Language: | English |
Additional information: | Copyright © 2021 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disibilities and John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
Keywords: | COVID-19, coronavirus, externalising behaviour, intellectual disability, internalising behaviour, parental well-being, siblings |
UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry |
URI: | https://discovery.ucl.ac.uk/id/eprint/10123482 |
1. | United States | 7 |
2. | United Kingdom | 3 |
3. | India | 1 |
4. | Australia | 1 |
5. | Norway | 1 |
6. | Portugal | 1 |
7. | China | 1 |
8. | South Africa | 1 |
9. | Russian Federation | 1 |
10. | Ukraine | 1 |
Archive Staff Only
View Item |