Mott, CE;
Ng, K;
Alifrangis, C;
(2019)
The management of patients with learning difficulties and testicular cancer: overcoming barriers to improve care.
BMJ Case Reports
, 12
(11)
, Article e227330. 10.1136/bcr-2018-227330.
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Abstract
Cancer-specific survival rates in patients with learning difficulties (LD) are poorer than the general population. Issues such as delayed diagnosis, compliance, consent and needs for individualised care and support requirements can make it more demanding to manage these patients in a busy clinical environment. Our case highlights a patient with learning disabilities who presented with advanced testicular cancer due to delayed detection, and the challenges needing consideration to ensure such patients receive good care. This report also highlights an example of adapting curative intent treatment to an individual with complex needs, and the importance of patient and family involvement in decision-making to ensure these vulnerable patients receive safe and effective healthcare. The practicalities of multidisciplinary team working in the context of key legislation and existing frameworks to guide practice in the management of LD patients are also discussed.
| Type: | Article |
|---|---|
| Title: | The management of patients with learning difficulties and testicular cancer: overcoming barriers to improve care |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1136/bcr-2018-227330 |
| Publisher version: | https://doi.org/10.1136/bcr-2018-227330 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Disability, healthcare improvement and patient safety, oncology, prevention, screening (oncology), Antineoplastic Combined Chemotherapy Protocols, Decision Making, Shared, Delayed Diagnosis, Diagnosis, Differential, Humans, Learning Disabilities, Male, Middle Aged, Patient Care Team, Patient Compliance, Seminoma, Testicular Neoplasms, Treatment Outcome |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Cancer Institute |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10112064 |
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