Sebeh, Alaa G.; (1996) Evaluation of community based rehabilitation for disabled children in urban slums in egypt. Doctoral thesis (Ph.D), UCL (University College London).

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Abstract

This research compares three programmes serving young intellectually disabled children in the slums of Cairo and Alexandria. These are a Community Based Rehabilitation (CBR) project dependent on local resources and parental involvement, an Outreach project dependent on well trained specialists and a Mother and Child Health (MCH) centre based project offering parents weekly training sessions. Outcome measures are child progress, assessed by the Griffiths Mental Developmental Scales and the Receptive-Expressive Emergent Language Scale, parental attitudes measured by the Short Form of the Questionnaire on Resources and Stress, and the social support network using the Family Support Scale. The research also tests the hypothesis that parents are more involved in teaching their young intellectually disabled children when the developmental programme objectives accord with their priorities rather than being imposed by professionals. Short term sustainability of the CBR programme outcomes after withdrawal of external support is examined. Children from the CBR project (27), Outreach programme (24), MCH programme (26) and a waiting list control group (28) were assessed before the intervention, and twelve and eighteen months later (the control group after twelve months only). Family involvement in two programmes was assessed by counting the teaching-related activities in the previous day from the mother's description, with construct validity checked through two additional measures taken on the MCH group alone. Children in the CBR and Outreach groups made significantly accelerated progress compared with the MCH and Control groups. Parents in the CBR group reported significantly greater change in level of support from their family and community, family involvement in teaching and positive parental attitudes. The research demonstrates the successful impact of home based intervention for disabled children in urban slums in Egypt. The CBR approach had additional advantages in terms of mobilising local support and increasing parental positive involvement. It was more cost effective, and thus has greater prospects for sustainability.

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