Alsoghier, A;
(2020)
Patient informational needs concerning oral epithelial dysplasia.
Doctoral thesis (Ph.D), UCL (University College London).
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Abstract
Patient education through clinician-patient health information exchange is essential in the clinical care of people with chronic and pre-malignant diseases such as, perhaps, the oral epithelial dysplasia (OED). The literature review found a knowledge gap on what information an individual with OED may want or considered important, a lack of specific instrument that can be used to assess the patient’s information needs (IN) and a shortage of studies available on whether individuals with OED would exhibit higher prevalence of symptoms, that can be experienced with cancer-linked conditions, including the anxiety and depression, dental anxiety and poorer oral health-related quality of life (OHQoL) compared to the general population or those with other chronic diseases. Thus, the study aimed to (1) assess what information patients would find when they search the Internet, (2) identify instruments that can be helpful to develop an IN instrument, (3) develop and determine the psychometric properties of the new IN instrument for OED (ODIN-Q), (4) assess the IN about OED using ODIN-Q, (5) determine the patient-clinician concordance on this information, (6) assess the prevalence of anxiety and depression, dental anxiety and OED impact on OHQoL and (7) develop and assess a patient information leaflet on OED. The analyses of the web indicated a shortage of content with the presented content being of low quality, poor understandability and actionability and challenging to read. The newly developed IN instrument (ODIN-Q) showed adequate psychometric properties and indicated that 52% of patients had unmet IN. Clinicians predicted the highest important information to patients. However, they exhibited poor prediction on its importance. The prevalence rates for symptoms of anxiety, depression and emotional distress at 30%, 16% and 26%, respectively. While dental anxiety levels were like those in a general population, OHQoL scores were notably higher. The newly developed leaflet was found to be acceptable and readable by most of the respondents.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | Ph.D |
| Title: | Patient informational needs concerning oral epithelial dysplasia |
| Event: | UCL (University College London) |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| Additional information: | Copyright © The Author 2020. Original content in this thesis is licensed under the terms of the Creative Commons Attribution 4.0 International (CC BY 4.0) Licence (https://creativecommons.org/licenses/by/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Eastman Dental Institute |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10108094 |
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