Pera, MC;
Coratti, G;
Mazzone, ES;
Montes, J;
Scoto, M;
De Sanctis, R;
Main, M;
... iSMAC Consortium Group, .; + view all
(2019)
Revised Upper Limb Module for Spinal Muscular Atrophy: 12 month changes.
Muscle Nerve
, 59
(4)
pp. 426-430.
10.1002/mus.26419.
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Abstract
INTRODUCTION: The aim of the study was to assess 12 month changes in upper limb function in patients affected by spinal muscular atrophy type 2 and 3. METHODS: Longitudinal 12 month data was collected in 114 patients, 60 type 2 and 54 type 3, using the Revised Upper Limb Module. RESULTS: The 12 month changes ranged between -7 and 9 (mean: -0.41; SD: 2.93). The mean changes were not significantly different between the three spinal muscular atrophy groups (-0.45 in type 2, -0.23 in non-ambulant type 3 and -0.34 in ambulant type 3, p=0.96) and the relationship between 12 month change and age classes was not significantly different among the three types of SMA patients. DISCUSSION: Our results confirm that the Module explores a wide range of functional abilities and can be used in ambulant and non-ambulant patients of different ages in conjunction with other functional scales.
| Type: | Article |
|---|---|
| Title: | Revised Upper Limb Module for Spinal Muscular Atrophy: 12 month changes |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1002/mus.26419 |
| Publisher version: | https://doi.org/10.1002/mus.26419 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Functional assessment, Longitudinal Data, Neuromuscular disorders, Outcome measures, Spinal Muscular Atrophy, Upper limb |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Developmental Neurosciences Dept |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10066945 |
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