Sutcliff, K; Alderson, P; Curtis, K; (2004) Children as partners in their diabetes care: An exploratory research study September-December 2003. Social Science Research Unit, Institute of Education, University of London: London, UK.

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Abstract

Can young children understand and also take an active part in managing their diabetes care? In-depth interviews were conducted with 24 children who have type I diabetes, and 29 parents, to elicit their views on these questions. The children were aged 3-12 years; they attend diabetes clinics in an inner London teaching hospital, and two large district general hospitals, one in inner London, the other in a commuter town. Two paediatricians and two specialist diabetes nurses were also interviewed. The children and parents reported: • their high levels of knowledge and skill; • high levels of satisfaction with the care from the specialist diabetes staff; • criticism that non-diabetes-specialist health practitioners often severely lacked knowledge about diabetes and were unable to provide adequate and safe care for the children; • the importance of direct experience of diabetes as a source of knowledge and skills, and therefore: the need for practitioners to recognise and learn from the wealth of knowledge amongst children and their parents to help practitioners to provide the best possible care and support, working as partners with children and parents.

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