Waite, Jacob;
(2017)
Understanding the facilitators and barriers to participation in people with acquired cognitive impairment.
Doctoral thesis (D.Clin.Psy), UCL (University College London).
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Abstract
The International Classification of Functioning, Disability and Health (ICF) model of disability holds that both personal and environmental factors predict participation. However, little is known about these predictors for people with dementia. Similarly, ‘partnership between patients and clinicians in research’ is a stated aim of UK government policy but little is known about what facilitates this in the dementia population, particularly with respect to peer research. This thesis sought to throw light on both areas. Part 1 comprises a systematic review of research about factors associated with social participation by adults with acquired cognitive impairment. Results showed that, in some studies, psychological factors (e.g. self-efficacy) social factors (e.g. caregiver functioning or social support), and societal factors (e.g. the built environment), and transport were associated with social participation. Part 2 comprises an interview-based, qualitative, empirical study of different perspectives regarding the facilitators and barriers to people with dementia (PWD) doing peer research. Findings highlighted multiple factors that facilitated or hindered this activity: assumptions and language, adapting activity to the needs and abilities of PWD, perceptions of danger and opportunities for building trust, and motivations. Part 3 comprises a critical appraisal of issues encountered in the course of carrying out this research. Topics discussed include: personhood versus citizenship, insider research, creating the topic guide and defining peer research.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | D.Clin.Psy |
| Title: | Understanding the facilitators and barriers to participation in people with acquired cognitive impairment |
| Event: | UCL (University College London) |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| UCL classification: | UCL > Provost and Vice Provost Offices UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10039006 |
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