Browse by UCL people
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Number of items: 43.
Article
Abrol, E;
Groszmann, M;
Pitman, A;
Hough, R;
Taylor, RM;
Aref-Adib, G;
(2017)
Exploring the digital technology preferences of teenagers and young adults (TYA) with cancer and survivors: a cross-sectional service evaluation questionnaire.
Journal of Cancer Survivorship
, 11
(6)
pp. 670-682.
10.1007/s11764-017-0618-z.
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Ahmed, K;
Kyte, D;
Keeley, T;
Efficace, F;
Armes, J;
Brown, JM;
Calman, L;
... Calvert, M; + view all
(2016)
Systematic evaluation of patient-reported outcome (PRO) protocol content and reporting in UK cancer clinical trials: the EPiC study protocol.
BMJ Open
, 6
(9)
, Article e012863. 10.1136/bmjopen-2016-012863.
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Bautista-Gonzalez, Elysse;
Taylor, Rachel M;
Fern, Lorna A;
Barber, Julie A;
Cargill, Jamie;
Dobrogowska, Rozalia;
Feltbower, Richard G;
... Vindrola-Padros, Cecilia; + view all
(2025)
Exploring the Coordination of Cancer Care for Teenagers and Young Adults in England and Wales: BRIGHTLIGHT_2021 Rapid Qualitative Study.
Cancers
, 17
(23)
, Article 3874. 10.3390/cancers17233874.
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Blackwood, DH;
Walker, D;
Mythen, MG;
Taylor, RM;
Vindrola-Padros, C;
(2019)
Barriers to advance care planning with patients as perceived by nurses and other healthcare professionals: A systematic review.
Journal of Clinical Nursing
, 28
(23-24)
pp. 4276-4297.
10.1111/jocn.15049.
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Fern, Lorna A;
Bautista-Gonzalez, Elysse;
Barber, Julie A;
Cargill, Jamie;
Feltbower, Richard G;
Haddad, Laura;
Lawal, Maria;
... Taylor, Rachel M; + view all
(2025)
Does Joint Care Impact Teenage and Young Adult's Patient-Reported Outcomes After a Cancer Diagnosis? Results from BRIGHTLIGHT_2021.
Cancers
, 17
(23)
, Article 3868. 10.3390/cancers17233868.
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Fern, LA;
Taylor, RM;
Barber, J;
Alvarez-Galvez, J;
Feltbower, R;
Lea, S;
Martins, A;
... Whelan, J; + view all
(2021)
Processes of care and survival associated with treatment in specialist teenage and young adult cancer centres: results from the BRIGHTLIGHT cohort study.
BMJ Open
, 11
(4)
, Article e044854. 10.1136/bmjopen-2020-044854.
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Finch, Alison;
Cooper, Silvie;
Raine, Rosalind;
Taylor, Rachel M;
Gibson, Faith;
(2023)
The Development of Ambulatory Cancer Care in the UK: A Scoping Review of the Literature.
European Journal of Cancer Care
, 2023
, Article 4589362. 10.1155/2023/4589362.
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Hughes, L;
Fern, LA;
Whelan, JS;
Taylor, RM;
Study Group, B;
(2023)
Young people's opinions of cancer care in England: the BRIGHTLIGHT cohort.
BMJ open
, 13
(9)
, Article e069910. 10.1136/bmjopen-2022-069910.
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Hughes, Luke;
Petrella, Anika;
Fern, Lorna A;
Taylor, Rachel M;
(2023)
Who Is Responsible for Nurse Wellbeing in a Crisis? A Single Centre Perspective.
Psych
, 5
(3)
pp. 650-661.
10.3390/psych5030041.
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Hughes, Luke;
Taylor, Rachel M;
Fern, Lorna A;
Monaghan, Lisa;
Flint, Beverley;
Gibbons, Sue;
Petrella, Anika;
(2023)
Coping with psychological distress during COVID-19: a cautionary note of self-criticalness and personal resilience among healthcare workers.
Continuity & Resilience Review
10.1108/crr-10-2022-0024.
(In press).
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Kenten, C;
Martins, A;
Fern, LA;
Gibson, F;
Lea, S;
Ngwenya, N;
Whelan, JS;
(2017)
Qualitative study to understand the barriers to recruiting young people with cancer to BRIGHTLIGHT: a national cohort study in England.
BMJ Open
, 7
(11)
, Article e018291. 10.1136/bmjopen-2017-018291.
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Kenten, C;
Ngwenya, N;
Gibson, F;
Flatley, M;
Jones, L;
Pearce, S;
Wong, G;
... Whelan, J; + view all
(2019)
Understanding care when cure is not likely for young adults who face cancer: a realist analysis of data from patients, families and healthcare professionals.
BMJ Open
, 9
(1)
, Article e024397. 10.1136/bmjopen-2018-024397.
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Koo, MM;
Lyratzopoulos, G;
Herbert, A;
Abel, GA;
Taylor, RM;
Barber, JA;
Gibson, F;
... Fern, LA; + view all
(2020)
Association of Self-reported Presenting Symptoms With Timeliness
of Help-Seeking Among Adolescents and Young Adults With Cancer
in the BRIGHTLIGHT Study.
JAMA Network Open
, 3
(9)
, Article e2015437. 10.1001/jamanetworkopen.2020.15437.
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Kosir, U;
Bowes, L;
Taylor, RM;
Gerrand, C;
Windsor, R;
Onasanya, M;
Martins, A;
(2020)
Psychological adaptation and recovery in youth with sarcoma: a qualitative study with practical implications for clinical care and research.
BMJ Open
, 10
(11)
, Article e038799. 10.1136/bmjopen-2020-038799.
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Kyte, D;
Retzer, A;
Ahmed, K;
Keeley, T;
Armes, J;
Brown, JM;
Calman, L;
... Calvert, M; + view all
(2019)
Systematic Evaluation of Patient-Reported Outcome Protocol Content and Reporting in Cancer Trials.
Journal of the National Cancer Institute
, 111
(11)
pp. 1170-1178.
10.1093/jnci/djz038.
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Lea, S;
Gibson, F;
Taylor, RM;
(2021)
"Holistic Competence": How Is it Developed, Shared, and Shaped by Health Care Professionals Caring for Adolescents and Young Adults with Cancer?
Journal of Adolescent and Young Adult Oncology
, 10
(5)
pp. 503-511.
10.1089/jayao.2020.0120.
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Lea, S;
Martins, A;
Fern, LA;
Bassett, M;
Cable, M;
Doig, G;
Morgan, S;
... Taylor, RM; + view all
(2020)
The support and information needs of adolescents and young adults with cancer when active treatment ends.
BMC Cancer
, 20
(1)
, Article 697. 10.1186/s12885-020-07197-2.
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Lüchtenborg, Margreet;
Huynh, Jennie;
Armes, Jo;
Plugge, Emma;
Hunter, Rachael M;
Visser, Renske;
Taylor, Rachel M;
(2024)
Cancer incidence, treatment, and survival in the prison population compared with the general population in England: a population-based, matched cohort study.
The Lancet Oncology
, 25
(5)
pp. 553-562.
10.1016/S1470-2045(24)00035-4.
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Lyratzopoulos, G;
Herbert, A;
Whelan, J;
Taylor, RM;
Barber, J;
Gibson, F;
Fern, L;
(2018)
Diagnostic timeliness in teenagers and young adults with cancer: Cross-sectional findings from the BRIGHTLIGHT cohort.
The Lancet Child and Adolescent Health
, 2
(3)
pp. 180-190.
10.1016/S2352-4642(18)30004-X.
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Martin, Sam;
Clark, Sigrún Eyrúnardóttir;
Gerrand, Craig;
Gilchrist, Katie;
Lawal, Maria;
Maio, Laura;
Martins, Ana;
... Fern, Lorna A; + view all
(2023)
Patients’ Experiences of a Sarcoma Diagnosis: A Process Mapping Exercise of Diagnostic Pathways.
Cancers
, 15
(15)
, Article 3946. 10.3390/cancers15153946.
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Martins, A;
Taylor, RM;
Lobel, B;
McCann, B;
Soanes, L;
Whelan, JS;
Fern, LA;
(2018)
Sex, Body Image, and Relationships: A BRIGHTLIGHT Workshop on Information and Support Needs of Adolescents and Young Adults.
Journal of Adolescent and Young Adult Oncology
, 7
(5)
pp. 572-578.
10.1089/jayao.2018.0025.
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McLeod, Ailey;
Iqbal, Syka;
Moniz, Sophie;
Mitchinson, Lucy;
Massou, Efthalia;
Taylor, Rachel;
Mehigan, Sinead;
... Vindrola-Padros, Cecilia; + view all
(2025)
Expansive Learning in Practice: A Rapid Evaluation of a Student Nurse Placement Model (Empirical Research Mixed Methods).
Journal of Advanced Nursing
10.1111/jan.70315.
(In press).
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Ngwenya, N;
Kenten, C;
Jones, L;
Gibson, F;
Pearce, S;
Flatley, M;
Hough, R;
... Whelan, J; + view all
(2017)
Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis.
Journal of Adolescent and Young Adult Oncology
, 6
(2)
pp. 200-212.
10.1089/jayao.2016.0055.
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Pengelly, Catherine;
Spring, Carolyn;
Taylor, Rachel M;
(2023)
An evaluation of staff experiences of the Royal Literary Fund writer-in-residence service to support improvements in written communication in healthcare.
Qualitative Research in Medicine & Healthcare
, 7
(3)
, Article 11601. 10.4081/qrmh.2023.11601.
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Petrella, Anika;
Storey, Lesley;
Hulbert-Williams, Nicholas J;
Fern, Lorna A;
Lawal, Maria;
Gerrand, Craig;
Windsor, Rachael;
... Taylor, Rachel M; + view all
(2023)
Fear of Cancer Recurrence in Patients with Sarcoma in the United Kingdom.
Cancers
, 15
(3)
, Article 956. 10.3390/cancers15030956.
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Phillips, N;
Hughes, L;
Vindrola, Cecilia;
Petrella, A;
Fern, Lorna;
Panel-Coates, Flo;
Taylor, R;
(2022)
Impact of leadership on the nursing workforce during the COVID-19 pandemic.
BMJ Leader
10.1136/leader-2021-000588.
(In press).
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Retzer, A;
Calvert, M;
Ahmed, K;
Keeley, T;
Armes, J;
Brown, JM;
Calman, L;
... Kyte, D; + view all
(2021)
International perspectives on suboptimal patient-reported outcome trial design and reporting in cancer clinical trials: a qualitative study.
Cancer Medicine
, 10
(16)
pp. 5475-5487.
10.1002/cam4.4111.
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Retzer, A;
Keeley, T;
Ahmed, K;
Armes, J;
Brown, JM;
Calman, L;
Copland, C;
... Kyte, D; + view all
(2018)
Evaluation of patient-reported outcome protocol content and reporting in UK cancer clinical trials: The EPiC study qualitative protocol.
BMJ Open
, 8
(2)
, Article e017282. 10.1136/bmjopen-2017-017282.
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Slade, AL;
Retzer, A;
Ahmed, K;
Kyte, D;
Keeley, T;
Armes, J;
Brown, JM;
... Calvert, MJ; + view all
(2021)
Systematic review of the use of translated patient-reported outcome measures in cancer trials.
Trials
, 22
, Article 306. 10.1186/s13063-021-05255-z.
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Spring, Carolyn;
Hogg, Julie;
Holliday, Judith;
Cooke, Jo;
Taylor, Rachel M;
(2023)
Using the making Visible the ImpaCT Of Research (VICTOR) questionnaire to evaluate the benefits of a fellowship programme for nurses, midwives and allied health professionals.
Nurse Researcher
10.7748/nr.2023.e1864.
(In press).
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Stanton, Joel;
Stiles, Carol;
Anderson, Paula;
Taylor, Rachel M;
Vindrola-padros, Cecilia;
Ivany, Elena;
(2026)
What Decision-Making Processes Are Used by Nurses in Initiating, Monitoring, and Ending One-to-One Observations? A Systematic Review.
Journal of Nursing Care Quality
, 41
(1)
pp. 42-48.
10.1097/NCQ.0000000000000878.
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Taylor, Rachel M;
Hughes, Luke;
Fern, Lorna A;
Hogg, Julie;
Petrella, Anika;
(2023)
Evaluation of the impact of redeployment during the COVID-19 pandemic: results from a multi-centre survey.
Journal of Research in Nursing
, 28
(6-7)
pp. 401-415.
10.1177/17449871231206916.
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Taylor, Rachel M;
Whelan, Jeremy S;
Barber, Julie A;
Alvarez-Galvez, Javier;
Feltbower, Richard G;
Gibson, Faith;
Stark, Dan P;
(2024)
The Impact of Specialist Care on Teenage and Young Adult Patient-Reported Outcomes in England: A BRIGHTLIGHT Study.
Journal of Adolescent and Young Adult Oncology
10.1089/jayao.2023.0141.
(In press).
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Taylor, RM;
Fern, LA;
Barber, J;
Gibson, F;
Lea, S;
Patel, N;
Morris, S;
... Whelan, JS; + view all
(2021)
Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme.
Programme Grants for Applied Research
, 9
(12)
10.3310/pgfar09120.
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Taylor, RM;
Whelan, JS;
Gibson, F;
Morgan, S;
Fern, LA;
(2018)
Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: Insights from 10 years of user involvement.
Research Involvement and Engagement
, 4
(1)
, Article 50. 10.1186/s40900-018-0135-x.
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Taylor, RM;
Aslam, N;
Lea, S;
Whelan, JS;
Fern, LA;
(2017)
Optimizing a Retention Strategy with Young People for BRIGHTLIGHT, a Longitudinal Cohort Study Examining the Value of Specialist Cancer Care for Young People.
Journal of Adolescent and Young Adult Oncology
, 6
(3)
pp. 459-469.
10.1089/jayao.2016.0085.
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Taylor, RM;
Fern, LA;
Aslam, N;
Whelan, JS;
(2016)
Direct access to potential research participants for a cohort study using a confidentiality waiver included in UK National Health Service legal statutes.
BMJ Open
, 6
(8)
, Article e011847. 10.1136/bmjopen-2016-011847.
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Taylor, RM;
Fern, LA;
Barber, J;
Alvarez-Galvez, J;
Feltbower, R;
Lea, S;
Martins, A;
... Whelan, J; + view all
(2020)
Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study.
BMJ Open
, 10
(11)
, Article e038471. 10.1136/bmjopen-2020-038471.
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Taylor, RM;
Fern, LA;
Barber, J;
Alvarez-Galvez, J;
Feltbower, R;
Morris, S;
Hooker, L;
... Whelan, JS; + view all
(2019)
Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England.
BMJ Open
, 9
(4)
, Article e027797. 10.1136/bmjopen-2018-027797.
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Taylor, RM;
Fern, LA;
Solanki, A;
Hooker, L;
Carluccio, A;
Pye, J;
Jeans, D;
... Whelan, JS; + view all
(2015)
Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.
Health and Quality of Life Outcomes
, 13
, Article 107. 10.1186/s12955-015-0312-7.
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Taylor, RM;
Solanki, A;
Aslam, N;
Whelan, JS;
Fern, LA;
(2016)
A participatory study of teenagers and young adults views on access and participation in cancer research.
European Journal of Oncology Nursing
, 20
pp. 156-164.
10.1016/j.ejon.2015.07.007.
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Vindrola-Padros, Cecilia;
Fern, Lorna A;
Gerrand, Craig;
Hulbert-Williams, Nicholas J;
Lawal, Maria;
Storey, Lesley;
Wells, Mary;
... Taylor, Rachel M; + view all
(2023)
Experiences of fear of recurrence in patients with sarcoma.
Journal of Psychosocial Oncology Research and Practice
, 5
(4)
10.1097/or9.0000000000000113.
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Vindrola-Padros, C;
Taylor, RM;
Lea, S;
Hooker, L;
Pearce, S;
Whelan, J;
Gibson, F;
(2016)
Mapping Adolescent Cancer Services: How Do Young People, Their Families, and Staff Describe Specialized Cancer Care in England?
Cancer Nursing
, 39
(5)
pp. 358-366.
10.1097/NCC.0000000000000315.
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