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Research led by participants: a new social contract for a new kind of research

Vayena, E; Brownsword, R; Edwards, SJ; Greshake, B; Kahn, JP; Ladher, N; Montgomery, J; ... Tasioulas, J; + view all (2016) Research led by participants: a new social contract for a new kind of research. Journal of Medical Ethics , 42 pp. 216-219. 10.1136/medethics-2015-102663. Green open access

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Abstract

In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.

Type: Article
Title: Research led by participants: a new social contract for a new kind of research
Open access status: An open access version is available from UCL Discovery
DOI: 10.1136/medethics-2015-102663
Publisher version: http://dx.doi.org/10.1136/medethics-2015-102663
Language: English
Additional information: This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > UCL BEAMS
UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Maths and Physical Sciences
UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Maths and Physical Sciences > Dept of Science and Technology Studies
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Laws
URI: https://discovery.ucl.ac.uk/id/eprint/1467166
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