UCL Discovery
UCL home » Library Services » Electronic resources » UCL Discovery

The impact of stigma and discrimination on psychological distress in people with intellectual disability and access to health services: a mixed methods approach

Ali, AK; (2013) The impact of stigma and discrimination on psychological distress in people with intellectual disability and access to health services: a mixed methods approach. Doctoral thesis , UCL (University College London). Green open access

[img]
Preview
PDF
PhD final version.pdf
Available under License : See the attached licence file.

Download (4MB)

Abstract

Background Self stigma has been associated with psychological distress, poorer adherence to treatment and is a barrier to help seeking behaviour in people with mental illness. Little is known about the impact of stigma on people with intellectual disability (ID). In addition, people with ID are more likely to experience disparities in accessing health care, possibly as a result of discrimination and inadequate knowledge of clinicians about the health needs of this vulnerable group. Aims 1. To examine the association between self reported stigma and psychological distress, quality of life, treatment adherence and service use in people with ID 2. To explore experiences of health services by people with ID, particularly in relation to whether people have experienced discrimination from health services. Methods 1. A cross-sectional study of 229 participants with mild to moderate ID, from 12 centres, was conducted to address the first aim. Data was analysed using a random effects regression model. 2. A qualitative study using semi-structured interviews, with 15 service use and carer dyads (29 participants), was used to examine the second aim. Data was analysed using thematic analysis. Results 1. Self reported stigma was positively associated with psychological distress and higher service use, and negatively associated with quality of life. There was some evidence that self reported stigma was associated with lower treatment adherence. Psychological distress mediated these relationships. 2. Half the participants had reported experiencing discrimination from health services. Accounts included negative staff attitudes and behaviour, and failure of services to make reasonable adjustments. Implications There is an urgent need to develop interventions that tackle self reported stigma and psychological distress in people with ID. Health services need to ensure that reasonable adjustments are made in order to reduce both direct and indirect discrimination of people with ID.

Type: Thesis (Doctoral)
Title: The impact of stigma and discrimination on psychological distress in people with intellectual disability and access to health services: a mixed methods approach
Open access status: An open access version is available from UCL Discovery
Language: English
Keywords: Stigma, discrimination, intellectual disability, Health services
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/1416294
Downloads since deposit
2,591Downloads
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item