Twamley, K;
Craig, F;
Kelly, P;
Hollowell, DR;
Mendoza, P;
Bluebond-Langner, M;
(2014)
Underlying barriers to referral to paediatric palliative care services: knowledge and attitudes of healthcare professionals in a paediatric tertiary care centre in the United Kingdom.
Journal of Child Health Care
, 18
(1)
pp. 19-30.
10.1177/1367493512468363.
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Abstract
Referrals to children’s palliative care services typically occur late in the illness trajectory, with many children who would benefit not referred at all. Previous studies report health care professionals’ (HCPs) assessment of various parent-related factors as barriers to referral. We conducted a cross-sectional survey of HCPs working in a paediatric tertiary care hospital in the United Kingdom, with an established paediatric palliative care team, to explore staff perceptions of barriers, knowledge and attitudes, with the aim of developing interventions to increase patient access to palliative care services. Survey respondents evidenced good knowledge of the principles of palliative care in closed questions, but their attitudes expressed in open-text questions and reported reasons to refer to a palliative care service demonstrated an association of palliative care with death and dying. We suggest that the association of palliative care with end of life may be a modifiable factor relevant to late and non-referral and deserving of further investigation and attention in education and training.
| Type: | Article |
|---|---|
| Title: | Underlying barriers to referral to paediatric palliative care services: knowledge and attitudes of healthcare professionals in a paediatric tertiary care centre in the United Kingdom |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1177/1367493512468363 |
| Publisher version: | http://dx.doi.org/10.1177/1367493512468363 |
| Additional information: | © The Author(s) 2013. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(http://www.uk.sagepub.com/aboutus/openaccess.htm). Accepted October 2012. Published Online First March 2013. Print date: tba |
| Keywords: | Attitudes; paediatric; palliative care; survey design; |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept |
| URI: | https://discovery.ucl.ac.uk/id/eprint/1384852 |
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