Devriendt, Thijs;
Ammann, Clemens;
W Asselbergs, Folkert;
Bernier, Alexander;
Costas, Rodrigo;
Friedrich, Matthias G;
Gelpi, Josep L;
... Borry, Pascal; + view all
(2021)
An agenda-setting paper on data sharing platforms: euCanSHare workshop.
Open Research Europe
, 1
, Article 80. 10.12688/openreseurope.13860.2.
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Abstract
Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.
| Type: | Article |
|---|---|
| Title: | An agenda-setting paper on data sharing platforms: euCanSHare workshop |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.12688/openreseurope.13860.2 |
| Publisher version: | https://doi.org/10.12688/openreseurope.13860.2 |
| Language: | English |
| Additional information: | This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third-party material in this article are included in the Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ |
| Keywords: | Data sharing, data infrastructure, open science, incentives, science policy |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics > Clinical Epidemiology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10176194 |
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