Terzis, Petros;
(2023)
Compromises and Asymmetries in the European Health Data Space.
European Journal of Health Law
, 30
(3)
pp. 345-363.
10.1163/15718093-bja10099.
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Abstract
In the post-pandemic world, the ability of researchers to reuse, for the purposes of scientific research, data that had been collected by others and for different purposes has rightfully become a policy priority. At the same time, new technologies with tremendous capacity in data aggregation and computation open new horizons and possibilities for scientific research. It is in this context that the European Commission published in May 2022 its proposal for a sector-specific regulation aiming at establishing the legal landscape and governance mechanisms for the secondary use of health data within the European Union. The ambitious project is centred on administrative efficiency and aspires to unleash the potential of new technologies. However, the quest for efficiency usually comes with privacy compromises and power asymmetries and the case of the European Health Data Space Regulation is no different. This paper draws attention to some of these compromises and suggests specific amendments.
| Type: | Article |
|---|---|
| Title: | Compromises and Asymmetries in the European Health Data Space |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1163/15718093-bja10099 |
| Publisher version: | https://doi.org/10.1163/15718093-bja10099 |
| Language: | English |
| Additional information: | This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
| Keywords: | Big Tech; European Health Data Space; health data; secondary use; technology |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > UCL SLASH UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Laws |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10159771 |
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