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The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome

Harvey, H; Ashworth, M; Palikara, O; Van Herwegen, J; (2020) The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome. Journal of Autism and Developmental Disorders 10.1007/s10803-020-04520-5. (In press).

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Abstract

Vision problems can lead to negative developmental outcomes. Children with Williams syndrome and Down syndrome are at higher risk of vision problems, and these are less likely to be detected due to diagnostic overshadowing and difficulty accessing eye-care. Education, Health and Care (EHC) plans are statutory documents, introduced by the Children and Families Act 2014 in England, with the intention of integrating provision across these domains. Vision issues should be reported in these plans, and recommendations made about appropriate adjustments for them. We analysed the EHC plans from 53 children with Down or Williams syndrome. Our results showed significant underreporting, especially for children with Williams syndrome, and little explanation of what adjustments should be made. We also report pockets of good practice.

Type: Article
Title: The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome
DOI: 10.1007/s10803-020-04520-5
Publisher version: https://doi.org/10.1007/s10803-020-04520-5
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Learning and Leadership
UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Psychology and Human Development
URI: https://discovery.ucl.ac.uk/id/eprint/10098042
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