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Communication with children and adolescents about the diagnosis of their own life-threatening condition

Stein, A; Dalton, L; Rapa, E; Bluebond-Langner, M; Hanington, L; Stein, KF; Ziebland, S; ... Yousafzai, A; + view all (2019) Communication with children and adolescents about the diagnosis of their own life-threatening condition. The Lancet , 393 (10176) pp. 1150-1163. 10.1016/S0140-6736(18)33201-X. Green open access

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Abstract

Summary When a child is diagnosed with a life-threatening condition, one of the most challenging tasks facing health-care professionals is how to communicate this to the child, and to their parents or caregivers. Evidence-based guidelines are urgently needed for all health-care settings, from tertiary referral centres in high-income countries to resource limited environments in low-income and middle-income countries, where rates of child mortality are high. We place this Review in the context of children's developing understanding of illness and death. We review the effect of communication on children's emotional, behavioural, and social functioning, as well as treatment adherence, disease progression, and wider family relationships. We consider the factors that influence the process of communication and the preferences of children, families, and health-care professionals about how to convey the diagnosis. Critically, the barriers and challenges to effective communication are explored. Finally, we outline principles for communicating with children, parents, and caregivers, generated from a workshop of international experts.

Type: Article
Title: Communication with children and adolescents about the diagnosis of their own life-threatening condition
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/S0140-6736(18)33201-X
Publisher version: https://doi.org/10.1016/S0140-6736(18)33201-X
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Science & Technology, Life Sciences & Biomedicine, Medicine, General & Internal, General & Internal Medicine, PEDIATRIC HIV DISCLOSURE, SIOP WORKING COMMITTEE, INFECTED CHILDREN, ANTIRETROVIRAL THERAPY, DEPRESSIVE SYMPTOMS, DEATH CONCEPTS, MENTAL-HEALTH, YOUNG-ADULTS, CANCER CARE, OF-LIFE
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Cancer Institute
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Cancer Institute > Research Department of Oncology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > UCL GOS Institute of Child Health > ICH Pop, Policy and Practice Prog
URI: https://discovery.ucl.ac.uk/id/eprint/10072029
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