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Challenges of administrative data linkages: experiences of Administrative DataResearch Centre for England (ADRC-E) researchers

Morris, H; Lanati, S; Gilbert, R; (2018) Challenges of administrative data linkages: experiences of Administrative DataResearch Centre for England (ADRC-E) researchers. Presented at: International Conferencde for Admin Data Research, Queen's University, Belfast, Northern Ireland. Green open access

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Abstract

Background: Linkage between administrative datasets routinely collected by government departments and other statutory bodies create rich resources for policy-relevant research. We describe how ADRC-E has achieved linkage between health and education data for England, and the challenges presented by this process. Methods: A key task of ADRC-E is to progress exemplar studies of novel data linkages, and build relationships with data providers. While navigating untested data application and permission processes, ADRC-E researchers have maintained detailed timelines and developed a framework to improve the efficiency of future applications. Results: The ADRC-E has approval to link four one-year birth cohorts of the National Pupil Database and Hospital Episode Statistics to facilitate research into outcomes for children with chronic conditions. The timeline of 3 years and 4 months represents 6 face-to-face meetings and 108 email and telephone correspondences. The technical challenges of data linkage have yet to be overcome before we receive data for research. Other examples of data timelines for cross-sectoral data linkage requests will be reported. Conclusions: The shifting legal landscape governing the use of personal data, and a lack of precedent mean that unlocking administrative data for research requires substantial time, diligence and expertise on the part of both researcher and data provider.

Type: Conference item (UNSPECIFIED)
Title: Challenges of administrative data linkages: experiences of Administrative DataResearch Centre for England (ADRC-E) researchers
Event: International Conferencde for Admin Data Research
Location: Queen's University, Belfast, Northern Ireland
Dates: 21-22 June 2018
Open access status: An open access version is available from UCL Discovery
DOI: 10.23889/ijpds.v3i2.566
Publisher version: https://doi.org/10.23889/ijpds.v3i2.566
Language: English
Additional information: © The Authors. Open Access under CC BY-NC-ND 4.0 (https:// creativecommons.org/licenses/by-nc-nd/4.0/deed.en).
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery.ucl.ac.uk/id/eprint/10066949
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