Tadic, V; Knowles, RL; Rahi, JS; (2012) Patient Reported Outcome and Experience Measures (PROMs and PREMs): Service Users’ Perspectives. Paediatric PROM&PREM Network: London, UK.

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PDF 2) Appendix 1 Focus group PPI report Oct 2012.pdf Available under License : See the attached licence file. Download (184kB)

Abstract

There is an increased emphasis in the NHS on development and application of Patient Reported Outcome and Experience Measures (PROMs and PREMs) as a means of patient-led assessment of health outcomes and care. Equally, in keeping with the ethos of Great Ormond Street Hospital (GOSH), it is essential that these measures are developed and applied with the involvement of patients and their families. To address the current strategies and challenges concerning development and application of PROMs and PREMs for children and young people, we set out to organise a multiprofessional workshop for academic and clinical colleagues from UCL Institute of Child Health and its two key clinical partners GOSH and Moorfields Eye Hospital (MEH). To inform the workshop, as a first step to exploring patient and parent views of PROMs and PREMs, we undertook expert service user consultations with a small group of patients attending GOSH services and their family members. These were held in form of two focus groups, one with young people who are currently, or have been, patients of GOSH, the other with their parents or carers and wider family members. The objective of these discussions was to capture, in the first instance GOSH service users’ views on PROMs and PREMs to understand how to engage effectively with patients and their parents so they understand the importance of completing these questionnaires as part of routine clinical care.

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