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Sense of coherence in family caregivers of people living with dementia: a mixed-methods psychometric evaluation

Stansfeld, J; Orrell, M; Vernooij-Dassen, M; Wenborn, J; (2019) Sense of coherence in family caregivers of people living with dementia: a mixed-methods psychometric evaluation. Health and Quality of Life Outcomes , 17 (1) , Article 44. 10.1186/s12955-019-1114-0. Green open access

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Abstract

Background: Family caregivers of people living with dementia can experience feelings of burden and stress but the concept of sense of coherence has been identified as an important protective trait against the negative impact of caregiving. Despite this, there has been no psychometric evaluation of the Sense of Coherence scale-13 with this population. Therefore, a psychometric evaluation was conducted using a mixed-methods approach. Method: Five hundred and eighty-three caregivers of people living with dementia participated in the study. We examined the feasibility, internal consistency, construct validity, floor and ceiling effects, concurrent validity and face validity of the Sense of Coherence scale-13. Results: The Sense of Coherence scale-13 demonstrated adequate internal consistency. Sense of coherence was positively related to resilience, sense of competence and health related quality of life, demonstrating good concurrent validity. However, the face validity of the scale was assessed as poor. Conclusion: The sense of coherence scale performed well under psychometric evaluation however guidance for caregivers should be examined and revised to reflect feedback from caregivers who completed this study, which could lead to improved face validity for this scale.

Type: Article
Title: Sense of coherence in family caregivers of people living with dementia: a mixed-methods psychometric evaluation
Open access status: An open access version is available from UCL Discovery
DOI: 10.1186/s12955-019-1114-0
Publisher version: https://doi.org/10.1186/s12955-019-1114-0
Language: English
Additional information: © The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creative commons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Keywords: Dementia, Alzheimer’s’, Caregiver, Measurement, Psychometrics, Validity, Reliability, Sense of coherence
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10075366
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