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Improving data availability for brain image biobanking in healthy subjects: Practice-based suggestions from an international multidisciplinary working group

BRAINS (Brain Imaging in Normal Subjects) Expert Working Group, .; Shenkin, SD; Pernet, C; Nichols, TE; Poline, J-B; Matthews, PM; van der Lugt, A; ... Wardlaw, JM; + view all (2017) Improving data availability for brain image biobanking in healthy subjects: Practice-based suggestions from an international multidisciplinary working group. NeuroImage , 153 pp. 399-409. 10.1016/j.neuroimage.2017.02.030. Green open access

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Abstract

Brain imaging is now ubiquitous in clinical practice and research. The case for bringing together large amounts of image data from well-characterised healthy subjects and those with a range of common brain diseases across the life course is now compelling. This report follows a meeting of international experts from multiple disciplines, all interested in brain image biobanking. The meeting included neuroimaging experts (clinical and non-clinical), computer scientists, epidemiologists, clinicians, ethicists, and lawyers involved in creating brain image banks. The meeting followed a structured format to discuss current and emerging brain image banks; applications such as atlases; conceptual and statistical problems (e.g. defining ‘normality’); legal, ethical and technological issues (e.g. consents, potential for data linkage, data security, harmonisation, data storage and enabling of research data sharing). We summarise the lessons learned from the experiences of a wide range of individual image banks, and provide practical recommendations to enhance creation, use and reuse of neuroimaging data. Our aim is to maximise the benefit of the image data, provided voluntarily by research participants and funded by many organisations, for human health. Our ultimate vision is of a federated network of brain image biobanks accessible for large studies of brain structure and function.

Type: Article
Title: Improving data availability for brain image biobanking in healthy subjects: Practice-based suggestions from an international multidisciplinary working group
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.neuroimage.2017.02.030
Publisher version: http://doi.org/10.1016/j.neuroimage.2017.02.030
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Neuroimaging; Brain image biobank; Data sharing
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > UCL Queen Square Institute of Neurology > Neurodegenerative Diseases
URI: https://discovery.ucl.ac.uk/id/eprint/1566555
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