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Factors associated with the quality of life of family carers of people with dementia: A systematic review

Farina, N; Page, TE; Daley, S; Brown, A; Bowling, A; Basset, T; Livingston, G; ... Banerjee, S; + view all (2017) Factors associated with the quality of life of family carers of people with dementia: A systematic review. Alzheimer's & Dementia , 13 (5) pp. 572-581. 10.1016/j.jalz.2016.12.010. Green open access

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Abstract

INTRODUCTION: Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. METHODS: Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. RESULTS: A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future. DISCUSSION: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.

Type: Article
Title: Factors associated with the quality of life of family carers of people with dementia: A systematic review
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.jalz.2016.12.010
Publisher version: http://doi.org/10.1016/j.jalz.2016.12.010
Language: English
Additional information: © 2017 Published by Elsevier Inc. on behalf of the Alzheimer’s Association. This is an open access article under the CC BY-NC-ND license (http:// creativecommons.org/licenses/by-nc-nd/4.0/).
Keywords: Dementia, Family caregivers, Family carers, Informal carers, Measurement Alzheimer's disease, Quality of life, Systematic review
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/1540386
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