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Proxy rated quality of life of care home residents with dementia: a systematic review

Robertson, S; Cooper, C; Hoe, J; Hamilton, O; Stringer, A; Livingston, G; (2017) Proxy rated quality of life of care home residents with dementia: a systematic review. International Psychogeriatrics , 29 (4) pp. 569-581. 10.1017/S1041610216002167. Green open access

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Abstract

BACKGROUND: Quality of life (QoL) is an important outcome for people with dementia living in care homes but usually needs to be rated by a proxy. We do not know if relative or paid carer proxy reports differ. We conducted the first systematic review and meta-analysis of data investigating whether and how these proxy reports of QoL differ. METHODS: We searched four databases: Medline, Embase, PsychInfo, and CINAHL in October 2015 with the terms: dementia, QoL, proxy, and care home. Included studies either compared proxy QoL ratings or investigated the factors associated with them. We meta-analyzed data comparing staff and family proxy rated QoL. RESULTS: We included 17/105 papers identified. We found no difference between global proxy ratings of QoL (n = 1,290; pooled effect size 0.06 (95% CI = -0.08 to 0.19)). Studies investigating factors associated with ratings (n = 3,537) found family and staff ratings correlated with the resident's physical and mental health. Staff who were more distressed rated resident QoL lower. Relatives rated it lower when the resident had lived in the care home for longer, when they observed more restraint, or contributed more to fees. CONCLUSIONS: Relatives and staff proxy QoL ratings share a clear relationship to resident health and overall ratings were similar. Rater-specific factors were, however, also associated with scores. Understanding why different raters consider the QoL of the same person differently is an important consideration when evaluating the meaning of proxy rated QoL. Proxy raters' backgrounds may affect their rating of QoL.

Type: Article
Title: Proxy rated quality of life of care home residents with dementia: a systematic review
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1017/S1041610216002167
Publisher version: https://doi.org/10.1017/S1041610216002167
Language: English
Additional information: Copyright © International Psychogeriatric Association 2017. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (CC BY 4.0) (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Keywords: Carers, dementia, nursing homes, quality of life
UCL classification: UCL
UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/1536405
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